CHD Awareness Week

Rudy came home early from school on Friday with a bug…a thick cough, congestion and low energy.  Thankfully he hasn’t registered a fever but the congestion kept him home from school yesterday and today as well.  Although we’ve laid low at home mostly, we did stop by Rudy’s class on Monday briefly to share a little bit about CHDs for National Congenital Heart Defect Awareness Week…so grateful for the opportunity to share with Rudy’s classmates!  😉  We’re hoping Rudy can lick this bug quick and head back to school by Thursday to share in his classroom’s Valentine exchange.

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Thinking of and celebrating Rudy, his fellow heart warriors and our heart heroes who have passed away…all of whom personify one of my favorite quotes: “In the end it won’t matter if you have a few scars, but it will matter if you didn’t live.” -Rich Mullins.

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‘Grateful for the lessons we’re learning from Rudy about what it means to really live.

Big Boy Skills

Rudy’s class got another “behind the scenes” look at a local hamburger joint during a field trip to In ‘n Out yesterday.  It was a fun time to hang out with friends and it also turned out to be a very helpful exercise in how to order food at a restaurant…turns out Rudy is a fast learner!

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An In ‘n Out selfie with Miss A and Nurse Sara.
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After the tour, we gave Rudy some time off the oxygen and he immediately made the rounds to visit his friends sitting at other tables…
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…Chillin’ with the big boys!
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Rudy’s turn to order…
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“Ummmm, hamburger and french fries…please.”
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Although Rudy doesn’t take bites of anything solid yet, it sure is encouraging to see him “go through the motions” and take an interest in food.
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So proud!!!

It just so happened that we stopped at Carl’s Jr later in the day for a quick dinner between activities and Rudy insisted on ordering for himself!!!  Ha Ha  He confused the workers a little bit by ordering things they don’t offer on their menu but he was very proud to show off his new big boy skill…now if we can just get him to eat all this food he is so motivated to order.  😉

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Mountain View Move-a-thon

Today was the annual Move-a-thon at Rudy’s school and Rudy did a GREAT job.  He conducted a FB “dollar donation” campaign and raised $100.00 (doubling his goal of raising $50) for his school!!!  More importantly, he participated in each of the four events and had a good time with his classmates.  😉

As you know, he doesn’t like all the fanfare that comes with events like these, but he was able to focus and complete the activities…he’s maturing and it shows.

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Our first stop was the running event and the goal was to walk around the track once. Nurse Sara and I were there to help steady Rudy on the uneven ground but he walked it on his own. He stopped a couple of times to catch his breath but he didn’t sit down once. 😉
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The next event was an epic obstacle course…he stayed to the side so his classmates could run the course at their own pace…
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…but occasionally he’d snag a workout partner. 🙂
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Although you can’t tell from the pictures, this morning started out quite cold and Rudy needed a little extra oxygen and time to warm up between events…thanks to nurse Karen and an extra blanket Rudy was snug as a bug.
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The last event involved learning some karate kicks. Rudy got to try it twice and when we headed back to his wheelchair, he turned to Sara and said “I like that”!!! The karate station was definitely his favorite! 😉
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Aaaaaand, the boy wonder fell asleep on the way home!!! The sign of energy well spent! GREAT JOB Rudy! The next big athletic event for Rudy will be the Special Olympics track meet later this spring…stay tuned!

January 2016 Highlights

So January was a bit of a wash (no pun intended) in terms of our flood project as we waited for the various bids to come in and the insurance details to be processed but the asbestos and contaminated  material removal began last week and is moving pretty quickly now!  We’re hoping to start the rebuild in the next week or so.

January was pretty full anyway so I suppose the timing of everything is as it should be.  Wilson headed back to school just in time to miss all the demolition fun…we miss him but he’s happy to back into the swing of things on campus.

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Rudy was introduced to Ping Pong in Wilson’s dorm and is HOOKED…he can’t stop talking about “paying ping pong in Wilthun’s room”.

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Rudy’s first dr. appointment of 2016 was with his cardiologist and, once again, the echo revealed no change in Rudy’s heart function.   As a result, Dr. Harake recommends we NOT schedule a heart cath any time soon and we welcome a procedure free winter for sure.  Some doctors recommend a routine annual cath for kids like Rudy whether the echo shows any change or not.  We appreciate Dr. Harake’s more conservative approach and will take full advantage of this next season in school and therapy without interruption.

Speaking of therapy, Rudy has been working on “self-care” in occupational therapy and actually goes to OT on Wednesday mornings in his pajamas so he can dress himself with his OT Jeanine…they like to sing “Do Your Ears Hang Low” and this particular morning, Rudy’s certainly were!!!

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Rudy’s OT shinanigans!

Rolf and Max enjoyed a dude trip up to San Jose over MLK Weekend for a hockey tournament…so glad for the occasional awesome pic of our hockey rock star –

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Speaking of hockey, Rudy made a surprising new friend at the hockey rink last week.  Rudy isn’t a big fan of dogs generally but Wally made for a fun walking partner during Max’s game.  They became fast friends and wore each other out…both Rudy and Wally fell asleep on their rides home from the rink that night!!!  Ha Ha

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Rudy the dog walker!

Tomorrow is Rudy’s “Move-a-thon” at his school and he had fun this past month raising $1 donations to meet his $50 goal!  His daily walks to the mailbox have been good conditioning…in addition to the dog walking  😉

Rudy and his special ed classmates got to go on a fun field trip to Kyle’s Kitchen (a favorite eatery in town that supports special needs programs)…Kyle goes to Rudy’s school and is a special big buddy.  Rudy LOVED getting a “behind the scenes look” at our favorite spot!!  Click here to see a quick video about our friend!

We enjoyed a messy dinner (complete with condiment art) on the eve of the asbestos abatement.  We’re looking forward to new carpet and fresh paint at the end of this process.  🙂

 

Our quarters have been a little small since the plastic barricade went up but the kids have been troopers and are making the most of it.  We’re starting February 2016 excited to have our house back in order and SUPER grateful for insurance!  😉

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Bring it ON 2016!

I’m typically a “glass half full” kind of gal.  I am genuinely optimistic and can rein in my worries before they get too big (most of the time) but, as I’ve mentioned before, the start of the new year is tough for me…part of it is the post-Christmas blues but it has become more than that.  In recent years, it seems to be the time of year when my fears surface and feel the most aggressive!  There is this point in time, usually in the week between Christmas and New Years when time stands still and the joy & relief of a well-executed Christmas turns to fear over the coming new year…instead of anticipating great things and making helpful resolutions, anxiety over all the “what ifs” regarding Rudy builds and a heaviness sets in.  It’s a battle every year and I just get to the point where I say “bring it on”!  The year is going to unfold as it will…all the “what ifs” are out of my control and so…bring it on!

Luckily Oma was still around the week between Christmas and New Year which provided a nice distraction this year…

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A New Year’s Eve hike in the nearby butterfly grove..

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One last sunset in 2015!

We rang in the new year with New York at 9pm…

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…and again with California at midnight…

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First sunrise of 2016!

We were greeted this new year with a plumbing issue turned minor flood on January 1st!  Sadly, the clean up will require some demolition and rebuild over the course of the next several weeks…(Wait!  Did I say “Bring it on”?  Ok, maybe that’s just tough talk on my part.  I take it back.  Ugh!)…but the upside is we’ll have a lovely new guest bed/bath when all is said and done.

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Rolf in “water extraction” mode on January 1st before the emergency crew arrived!

The carpet got pulled and discarded right away and we had a couple of days to dry things out, shuffle stuff around and make a comfortable spot for our exchange student from Australia visiting for the week!  Thankfully James is easy going and hasn’t minded the mess…since we’re waiting for insurance claims and bids anyway, hosting James has been another fun distraction…we’ll hate to see him leave bright and early tomorrow! 😦

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Rudy wearing his new koala backpack and showing off a package of Tim Tams that James brought from Australia!

We took James to the new ice rink in town for a little fun not realizing how much fun there was to be had!!!!  The plan was for Rolf to skate with the kids for a little bit while Rudy and I watched and then we’d leave and let the big kids come home on their own later…

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Fun on the ice…

…but then Rolf asked the on-ice monitor if we could bring Rudy out on the ice and she said YES!

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Joy! Joy! Joy!
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Family fun for all!!!

Of course, Max made it the most fun!

We ended up staying 2 1/2 hours and only made it home a few minutes before James and the big sibs!  Ha Ha  We’re pretty much party animals!

So, Rudy can add another item to his long list of milestone accomplishments…ice skating, check!  Happy New Year Everyone!  May the “what ifs” of 2016 be minor and the blessings abound for all!  🙂

 

 

 

Merry Christmas 2015

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The California Geylings 2015

We are enjoying celebrating Christmas with each other and Oma visiting from Alabama.  The past couple of weeks have been a string of fun-fueled, high octane days and now the hustle and bustle has subsided…we are blessed.  We trust your holiday and Christmas celebrations were fun too and filled with things that bring you great joy.  The past several days have been filled with things that remind me how very far we have come in our journey together and how much we have for which to be thankful…

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I went to the district office for one last jewelry show and Rudy talked Coach Galvan into a game of Rock ’em Sock ’em Robots!!! Rich!!!
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Olivia was honored by the Club West Running Club at a luncheon on the 17th as the Jr. High Female Athlete of the year! My favorite quote of the day was when her coach shared that after her undefeated season he asked her “What is your running history Olivia?” to which she answered “I don’t have a running history. This was my first time running.” 🙂
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The athletic accomplishments kept coming when Rolf reached his goal of paddling 1000 miles in 2015!
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He had a welcoming committee on shore to help celebrate! 🙂
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Rudy and his former teacher Mr. Casady (wearing his festive “Rudy the red-nosed reindeer” sweater) on the last day of school before vacation! Woo Hoo!!
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First day of Christmas break was spent in Santa Maria watching Max play hockey…
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…one of Rudy’s favorite pastimes!
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Christmas fun with friends at home…
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…and at the movie theater watching Star Wars!!! (2nd time for me and Max…the last time I went to the movie theater more than once to see the same movie was probably the original Star Wars films! Ha Ha)
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Rudy sharing his trademark joy at the Rescue Mission Christmas feast…

…and helping his brothers sing “Run, Run Rudolph”…

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Good times with special people!
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Rolf and his mama 😉
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Christmas Eve
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Slumber party in Rudy’s room!!

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Christmas morning

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Christmas JOY!
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Our Christmas was made extra special with our dear friends the Drummonds, their daughters and husbands and the Fluitt family…and extra, EXTRA special with the appearance of baby Carter!

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Livy’s a natural with Carter
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Livy holding a pooping Carter

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Kid pic 2015

We welcome a little down time the next couple of days before the start of the new year…time to rest, regroup, reflect and anticipate the blessings of 2016.  Merry Christmas dear ones!  We are grateful you are a part of our family’s story.

 

Great Moments with Mickey

Rudy’s long anticipated birthday trip to the Disney parks was such a GREAT idea that about a million other people decided to tag along but despite the insane crowds, we managed to enjoy the magic and squeeze out a few memory making moments to cherish.  Our first stop was Cars Land in California Adventure and we pretty much could have stayed there our whole visit!  It’s adorable.  Rudy wasn’t quite sure what to think at first…he was a bit awestruck meeting Lightening McQueen, Mater and Big Red up close and personal…but once he had time to process it all, he definitely wanted “more”…especially another ride on Radiator Racers!!

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Welcome to Radiator Springs!
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Main street with Nurse Sara and her daughter Kayley.
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Rudy’s first Lightening McQueen sighting.
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Meet and Greet with Dad.
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A friendly wave with Mater and Kayley.
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Big Red is BIG!
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Rudy looks a little worried in this picture but this race ride was a favorite for sure. 🙂  (We saved a seat for Wilson)
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Max and Livy taught Rudy the thrill of riding with his hands “up high”!!
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Which he quickly discovered applies to all rides!
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More fun in Radiator Springs…
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…and some more…
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…and some more!

Thanks to Nurse Sara and her family’s military discount, we got two days of fun for the price of one and Day Two was spent at Disneyland.  Turns out the happiest place on earth is a little overwhelming for the boy wonder but he did find his “happy place” on Splash Mountain…

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Splash Mountain Selfie!
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Woo Hoo!!
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Again, Dad, again!

Unfortunately, we struck out on the character picture photo ops.  I was looking forward to getting those priceless pics of Rudy with his favorite Disney friends so we tolerated the long lines for our chance to meet the super stars.  Our first attempt was with Olaf but Rudy fell sound asleep while we waited in line and was not easily roused so Max and Olivia followed his lead…

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Shhhhh, Olaf, they’re sleeping!
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Our wait in line wasn’t a total waste though…Rolf and the sibs got a toboggan ride out of it!!

Our next attempt was with the big guy himself…Mickey!!!  Rudy absolutley LOVES Mickey on tv and in books but when we approached meeting Mickey in person, he was uncharacteristically agitated and even screamed at Olivia to take him away!  We pulled out all the tricks in the book but Rudy wasn’t having any of it!

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Not so great moment with Mickey.

 

When Olivia and I failed at providing enough of a protective line of defense, Rudy sought refuge with the official photographer!
When Olivia and I failed to provide enough of a protective line of defense, Rudy sought refuge with the official photographer!
So, the end result was sans Rudy!!
So, the end result was sans Rudy!!

Our little mini-vacation was definitely a memorable start to the Thanksgiving week ‘o fun.  I guess I shouldn’t be surprised but from the looks of all the pictures I took, Rudy’s most fun Disney moments were spent playing with Max and Olivia just outside the park gates.  Ha Ha Ha

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Happy Belated Birthday Rudy!
Happy Belated Birthday Rudy!

The icing on top of the belated birthday cake was having Wilson come home for his Thanksgiving break the following day…We are enjoying a laid back weekend with awesome friends, fun holiday prep and simply being…together!

Happy Thanksgiving dear ones!!  How very grateful we are for our community of family and friends near and far!

All is right in "Rudy's World"!
All is right in “Rudy’s World”!

 

Thanksgiving Hummingbird

The Geyling household has been a little discombobulated the past couple of weeks as I’ve been working extra long hours in my shop like a little elf.  🙂  The Holiday Silver By Trish Jewelry season is officially open!  Woo Hoo!  I had my first open house last night, another one today and a handful of showings in the community this next month.  It’s beginning to feel a little like Christmas…but let’s not get ahead of ourselves, we don’t want to forget about our equally wonderful Thanksgiving!!!

Rudy blessed us this week with a new Thanksgiving decoration that he made at school.

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I was so excited to hang it up and instinctively asked “What is this Rudy?” as I grabbed the tape and proudly hung it in a prominent spot.  Without skipping a beat Rudy replied, “A hummingbird”.  “What?  No, Rudy, what is this bird called?”  “A hummingbird!”, he insisted.  He wasn’t letting go of the hummingbird thing so I decided to go at it from another angle…”Rudy!  What does this bird sound like?”  He thought for a second and said “Tweet, Tweet”.  Ok, so we have some work to do the next few days to nail down “turkey” and “gobble, gobble” before Thanksgiving but all in all, I’m very pleased with Rudy’s “Thanksgiving Hummingbird” and believe a new tradition has been born.

In addition to my mad jewelry making production and Rudy’s holiday preparations, the past couple of weeks have included some significant fun for the family.  Rolf and I celebrated our 23rd wedding anniversary on November 7th.  It was a super fun day that included Livy’s soccer game, Homecoming for Max and a Santa Barbara Rescue Mission Graduation…all of which left little time for an official anniversary celebration (we didn’t even get a picture together to commemorate the day) but Rolf and I were blessed to spend the day celebrating alongside people we love!! 🙂  One of these days, we’ll grab a nice dinner together.  😉

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All dressed up and ready to dance..with Homecoming date Sophia.
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Olivia and her soccer teammates met Julie Foudy (US Soccer World Cup champ and Olympian) at a SB Round Table event. So fun!!!

Olivia’s X Country team had a two week break to prepare for the city championships which occurred this past Thursday.  Livy was nervous in the days leading up to the race but was able to keep her nerves in check the day of the race.  🙂  The kids ran a two mile course at Elings park that included a handful of crazy hill climbs…I was impressed that all the kids finished the course!  Olivia was the one to beat but she kept her cool and ran a beautiful race.  She won and her team together secured an overall win for GVJH girls…Woo Hoo!!!  The GVJH boys team won too!  All these years I’ve enthusiastically watched the kids play sports I know nothing about…soccer, hockey, lacrosse, etc…but running I know after watching my dad’s successful running career for decades!  It’s fun to cheer on my girl in a familiar environment and see so much of my dad in her stride….eerie but precious!  I hope she decides to continue running in high school.  🙂

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Olivia is focused at the start of the race…
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Good friend Kyle and his sisters are there to give Livy a big hug at the finish!
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Champions! 😉
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The girls with Coach Paulsen and mascot Rudy!

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Livy and Grandpa Dick at a race in 2009.

We’re so thrilled to have a break from school and dr. appts this next week.  Rudy is anticipating a trip to Disneyland TOMORROW (whhaaat?) for a belated birthday celebration and we’re super excited to welcome Wilson home Tuesday night for the long Thanksgiving weekend!!!  Can’t. wait.

Happy Thanksgiving preparations everybody!!

 

 

School Games 2015

This has been a big week for the Geylings and school sports.  Max’s HS LaX team began pre-season practice yesterday with a scrimmage and Max came home so pumped about being out on the field again, his cross-training plan for the winter and the new 9th grade players who are interested in playing!!  He so genuinely enjoys hockey and LaX and takes great delight in not only the sport but also the people with whom he plays…it’s fun to watch.  Olivia continued her X-Country winning streak with a win at her last two meets.   She’s fun to watch too…all giggly and chatty with the other girls on her team in the minutes leading up to the race but then it’s “down to business” once she steps up to the starting line and her quiet determination quickly becomes her focus.  Her last meet of the season is in two weeks at Elings Park…with lots of hills!  As team mascot, Rudy’s responsibilities include fist-pumping all the GV runners before each race.  It takes him awhile to warm up to everyone but by the end of the last meet, he was double fist-bumping everyone.

Olivia's XC win in the 1.75mi.
Olivia’s XC win in the 1.75mi with team mascot Rudy…
...and the 2.0 mile!  (with youth pastor and friend Aaron)
…and the 2.0 mile! (with youth pastor and friend Aaron)

Yesterday was also the annual Soccer School Games sponsored by the Special Olympics of Southern California.  Rudy attended this event with his special ed classmates for the first time last year and was, shall we say, less than enthusiastic about participating…

Rudy's passive aggressive refusal to play in 20014!!
Rudy’s passive aggressive refusal to play in 2014!!

As a result, Miss A., nurse Sara and I did not have super high expectations about his participation level this year…even Coach Galvan (Adaptive PE teacher) had a “plan B” strategy in mind to get Rudy out on the field if needed.  The frustrating thing is that in APE class and at recess, Rudy is all about playing soccer but when it comes to the big, organized events, he’d rather not.  Ha Ha

Let the 2015 Soccer School Games begin!!
Let the 2015 Soccer School Games begin!!
One of many fields!!  It was so great to see so many schools participating...a real Special Ed community building event for sure!!!
One of many fields!! It was so great to see so many schools participating…a real Special Ed community building event for sure!!!
Rudy started out slow all by himself at the kick ball diamond...
Rudy starting out slow all by himself at the kick ball diamond…
Discussing "the plan" with Coach Galvan...
Discussing “the plan” with Coach Galvan…
Warming up with volunteer Spencer...
Warming up with volunteer Spencer…
Having fun at the skills test course...
Having fun at the skills test station…

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Checking out the game in progress with nurse Sara from the sideline...
Checking out the game in progress with nurse Sara from the sideline…
Making his way into the pack with Spencer and Sara...
Making his way into the pack with Spencer and Sara…
And again in Game 2 with Mama and Miss Tanya...
And again in Game 2 with Mama and Miss Tanya…
Rudy rushing the goal (what?!)...during half time!!
Rudy rushing the goal (what?!)…during half time!!
Not that it's all about the goals...but here's the final score!  Way to go Mountain View cougars!!
Not that it’s all about the goals…but here’s the final score! Way to go Mountain View cougars!!
Rudy's ribbon presentation!
Rudy’s ribbon presentation!
Show us your award Rudy!!
Show us your award Rudy!!

Rudy definitely exceeded our expectations and, most importantly, had fun!  And for me, it’s always an amazing sight to see so many people working so hard together to create a memory-making experience for these very special kids in our community.  A big thanks to the Special Olympics of Southern CA, the local school districts, special ed teachers & volunteers,  nurse Sara and coaches Galvan & Tanya for making it all happen!  Until next year…

Rudy's new friend volunteer Spencer.
Rudy’s new friend volunteer Spencer.
Coach Galvan
Coach Galvan (Rudy’s Ad.PE teacher)
Miss Tanya
Miss Tanya (Rudy’s Ad.PE Assistant)
Ride home.
Ride home.

Halloween 2015

Holidays have always been something we’ve anticipated and put energy into over the years as a family but I’ve noticed this year that holidays are becoming familiar to Rudy and his anticipation only adds to our joy.  Rolf pulled out all the stops in constructing Rudy’s robot costume and that certainly added to Rudy’s excitement…Rolf cleverly adapted Rudy’s Rifton walker which made it easy for Rudy to maneuver but his stamina was an issue.  Luckily, Rudy was content to wander around the school courtyard during the lengthy school costume parade on Friday and was happy to make two passes trick-or-treating around our cul-de-sac last night before calling it a night.  I parked Rudy’s robot on the lawn to welcome the trick-or-treaters that came to our house and it became a popular photo op prop for all who visited!  Ha Ha

Rudy who participates 110% during music class wouldn't sing during his school Halloween Sing but he did sit patiently and quietly while he waited for grades K-3 sing through their repertoire! (Slow but steady progress! Ha Ha)
Rudy who participates 110% during music class wouldn’t sing during his school Halloween Sing but he did sit patiently and quietly while he waited for grades K-3 sing through their repertoire! (Slow but steady progress! Ha Ha)
Rudy Robot with nurses Sara & Karen and office manager Jill!
Rudy Robot makes an appearance with nurses Sara & Karen and office manager Jill during the school costume parade.
Standing proud with special ed teacher Miss A and general ed teacher Mrs. Gallo!
Standing proud with special ed teacher Miss A and general ed teacher Mrs. Gallo!
Olivia recycled parts of her Minnie Mouse costume from 11 years earlier!! Cutest. mouse. EVER!
Olivia recycled parts of her Minnie Mouse costume from 11 years earlier!! Cutest. mouse. EVER!
These two make holidays fun!
These two make Halloween fun!
Fun with friends...
Fun with friends…
...and neighbors!
…and neighbors!

Halloween marks the start of my favorite season…a string of meaningful holidays made even more special this year with Wilson coming home for Thanksgiving, Christmas and New Years!  Rudy also begins a long list of doctor appointments starting with cardiology bright and early tomorrow morning and ending with neurology just before Christmas on December 17th.  I’m always grateful for the consults we have with Rudy’s specialists every quarter but it does certainly add to the hustle and the bustle of this next season.  Praying for encouraging reports and, dare we ask, emerging options.  🙂  Happy November Everybody!