Discovering My Voice

Well, it’s a HOT Monday in Goleta and we’re back to a normal weekly schedule after our trip to NYC and the 4th of July holiday week.  A big thanks to everyone who reached out to us on Friday and Saturday during the fire that broke out in our town.  I was actually down south when the Holiday Fire started on Friday night but Rolf and Olivia kept me updated via texts and phone calls.  The mandatory evacuation zone extended to a 1/2 mile from our home so R & O did end up packing a few suitcases full of pictures and important papers but never actually left the area.  It was a relatively small fire that was well contained within a day but, sadly, 20 structures (most of them homes) were lost.  It has been a tough year for our community.

To be honest, I’m starting the week off pretty overwhelmed.  I blame the heat because my perspective is definitely warped in extreme heat but I was kind of anticipating this would be a hard week even before the heatwave hit.  We’re back to the daily grind and that’s a BIG let down after our special family time away in NY and my weekend in San Diego with dear friends…both boys are gone now until the first week of August…and the looooooong, heartbreaking month of July is ahead of us.  I have a desk FULL of things I simply must sort through, bills to pay, medical stuff to follow up on and I can’t seem to muster up an ounce of motivation…my body is moving as slow as molasses.  At the end of our NY trip I wanted to get back to my bed and the comforts of my space at home while at the same time not wanting all the fun distraction of being away to end.  I still feel that way and just want to throw a toddler tantrum today because I want what I want…and what I want is, well, the impossible.

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The last of my summer travels ended in San Diego with my dear friends and former co-workers! 25 years may have passed since we worked together but the connections are just as tight! Love you all.
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I couldn’t have done the trip without these gals!
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The trip to SD also allowed me to personally send Max off on his Point Loma summer ministry team adventure…
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…he gets to tour for a month with a PL band leading worship at summer camps and churches in the southwest! So fun!

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So, what’s next?  I think Rolf and I are gearing up and bracing ourselves for all the unknowns that are headed our way as we prepare for the year anniversary of Rudy’s death.  It’s hard to know what to expect…it’s hard to know how the next few weeks will unfold emotionally and how that will impact our day to day.  The awareness of our grief is certainly heightened and the unpredictability of grief continues which is maddening.  I must say, though, the plan to have you all send us LM cars to honor Rudy at his gravesite on the 25th was GENIUS because we have a nice collection so far and every delivery brings us great joy and delight!!!  🙂

On the ALS front, I’m continuing my infusions of Radicava every two weeks (2 weeks on, 2 weeks off).  My home health nurse who comes to access my port tells me that her other clients are eager to start the next round after their 2-week break because they notice a difference when they are on the Radicava.  I can’t say I’m noticing much of a difference but maybe I’m not as “in tune” with my body.  So, I’m still acting in faith that it’s working to my advantage.  Because of a delay in scheduling, I don’t see the neurologist until the end of this month.  I haven’t seen her since March so it will be interesting to hear how she thinks I’m doing.

I received a BIG box in the mail a couple of weeks ago.  It contained an insurance-approved speech generating device that my speech pathologist has been working to get me for a few months now.  In fact, when we got news the device was being shipped to me, he sent me an email that read “Congratulations on your new Tobii-Dynavox device…”.  It took me back a bit.  I realized that, yes, this is something to celebrate.  It’s a big deal that I have it and a real gift for sure.  I am grateful.  It’s just that it’s the start of another chapter in this ALS journey.  It’s a device that will speak for me when I can no longer speak for myself…it’s a device that will keep me connected to the outside world when I can no longer engage the outside world for myself…it’s a device with a learning curve and I need to start learning how to use it now.  That’s heavy and heartbreaking.

Just to give you a little sneak peek into my process…within weeks of my diagnosis, Rolf and I began researching the many options out there for voice banking…a process where you record hundreds of sounds, words and phrases to be used later with the speech generating device to make a computer generated voice that sounds like you.  I actually ended up deciding not to voice bank.  My voice was already beginning to sound slurred and I just didn’t feel like it was worth the effort.  If I made the wrong decision for my family, I apologize, but I feel okay with my choice.  I just didn’t want to hear a slurred version of myself chirping back at me every time I wanted to say something…adding insult to injury.  I mean, if I have a choice, I’d much rather program a cool Australian accent or sophisticated British accent to switch things up a bit.  🙂  I share this cautiously as I know for many voice banking is a real life line and I’m not typically that vain but it’s how I felt at the time and I’m trusting my instincts.  I get a few hours of training with a company rep that I’m trying to set up now so once I get some time with the technology, I’m sure I’ll grow in my motivation to interact with it…I’ve said it before but the journey of ALS requires a daily assessment of where I’m at and what needs to be adapted to make life doable.  Where the focus up until now has mostly been mobility, communication now shares the radar and life charges on.  I’ll keep you posted and let you know what voice I land on.  🙂

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Olivia captured a rare picture of me and Rolf at an outdoor concert at El Cap a couple of Saturdays ago…
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We LOVE portrait mode!! Ha Ha

 

Our Concrete Jungle Adventure

Ahhh, we made it home safely from our epic adventure in the city that never sleeps and are taking a few days to slowly find our footing again (well, me anyway).  🙂

Actually, the fun began for us the weekend BEFORE our flight to New York on June 18th.  Rolf and I drove up to Palo Alto on Friday the 15th to celebrate our niece who graduated from Stanford that weekend.  It was refreshing to spend the evening with good friends and a beautiful afternoon on campus with Rolf’s sister, brother-in-law and niece.  We returned home late Saturday in time to celebrate Father’s Day with the boys and later with Olivia when she returned home from a lacrosse tournament in San Diego!

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Yay Heather! Class of 2018!
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Olivia’s first summer lacrosse tournament in San Diego…Go Mission Lacrosse!
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Happy Father’s Day Rolf
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More Father’s Day fun

Then, we got up early Monday morning for our flight out of LAX to NEW YORK CITY!

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Thanks to our friends Rob and Susan, we enjoyed stress free car service to and from the airport in Los Angeles…and again to our hotel in Times Square!  Such a huge practical help!

This trip was made extra-special by the number of details arranged by friends that added to the fun the Dream Foundation planned…and, of course, there were a number of divine blessings too.  Bottom line?  An army of earthly and heavenly angels had our family’s back and the trip couldn’t have gone smoother!  🙂  Here’s more detail than anyone would ever want (Ha, Ha, Ha)…

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Saddled up and ready for some FUN…
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The first divine blessing came in the form of a flight delay (a delay I prayed for) during a layover in Indianapolis which allowed me to have a quick visit with two of my best high school friends. ‘Grateful to have friends that drop everything to meet me in an airport food court. Ha Ha 🙂 
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Due to our delay getting into Newark, we didn’t make it to bed until nearly 3am on Tuesday but everyone was still all smiles for our 6:30am arrival to the ABC studio in Times Square…
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Thanks to Shelley, we got VIP tickets to GMA!

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Kevin Costner shaking Olivia’s hand…she got to tell him how much she liked “McFarland”. 🙂
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The audience handler singled out the boys (surprise, surprise) in his off camera schtick…
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Olivia and Amy Robach
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Ginger Zee…adorable.
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Michael Strahan was the sweetest.
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We left GMA and headed straight to Tiffany & Co on 5th Avenue for an appointment arranged by my friend Chelsea from the SB Tiffany & Co…

 

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Outfitted with my Audrey Hepburn sunglasses and black dress,  we were ushered into a private shopping suite and served croissants and tea/coffee…we literally had breakfast at Tiffanys!
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So fun!

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Thank you Chelsea for the fun surprise.
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Later that night we enjoyed “Wicked” -the first time for all of us…thank you Tami!!!…
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…and a late night trip to the top of the Rock after the show…
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A beautiful view of the city thanks to the Dream Foundation!
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Inside Rockefeller Center…album cover perhaps?

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Aaaaaand that concludes DAY ONE!!!  Ha Ha Ha

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On Day Two I met my favorite New Yorker…Kevin the ticket taker at the Empire State Building.  There was a small glitch with our tickets and we couldn’t get to the top but it was worth the walk just to meet Kevin…seriously!  🙂
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The kids set off on an excursion around town by themselves in search of this cool building that was the subject of a school project for Olivia this year…
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…$500 shoes…
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…and subway tile in an actual subway (with New York attitude)!
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The DF sent us to Aladdin that night…another excellent Broadway choice.
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We ended the day with a walk through Times Square…
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A stand-out even in a giant Times Square crowd.
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We braved the subway system with the scooter on Day 3 to go see the 9/11 memorial and museum…we spent two hours in the museum and still didn’t see everything. It was very well done but a little overwhelming after a couple of hours.

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A camouflaged World One Freedom Tower…

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It was such a beautiful day!
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Manhattan
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The Hudson River
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The East River and Brooklyn Bridge
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Later that night Rolf took the kids to see Bruce on Broadway while I rested back at the hotel.
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A highlight for Rolf for sure!

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Day 4 was spent with family as Rolf’s sister and her girls came down from Boston for the day…we walked along the High Line above Chelsea Market and spent the afternoon in Central Park.
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Cousin fun in Central Park

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On our last day in the city, we fanned out and spread a little Rudy love in the Big Apple. He wouldn’t have liked the crowds or noise in New York City but he would have really loved the colorful, crazy people we met!
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We squeezed in one last show…the matinee of Phantom of the Opera…
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…and did a little shopping at an outdoor market. Well, Livy and I shopped while the boys hung out looking at their phones. 😉
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We extended our trip a couple of days to tour around Rolf’s hometown in New Jersey.
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We spent a few hours on the Jersey Shore…

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…and enjoyed an evening with old, family friends and Oma (who just happened to be visiting friends in the northeast that week too!)
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Rolf worked here in high school…
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…ate here in high school…
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…and hung out in this pretty park!
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We got one last look at NYC from Jersey City the night before we flew home.

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God was very gracious to me all week with amazing weather. I don’t tolerate heat and humidity well and we ended up enjoying mild temps in the high 60s and low 70s ALL WEEK! It was amazing and the cooler temps allowed me to thoroughly enjoy all the excursions we took…a HUGE blessing!

Rolf and I had the added blessing of connecting with friends from long ago that just happened to be in NYC for various reasons…such a small world!

So, how do I sum it all up?  Certainly the collective effort of this trip is deeply touching to me…I feel loved and surrounded and lifted up…not only by those who participated in the particulars of the trip but also by those who took care of things at home and lifted us up in prayer.  The trip itself was precious family time together.  I’m not sure we could have squeezed anything else into it. 🙂  Being in the city was invigorating but also exhausting.  I think it was perfect timing for me physically…my limitations in navigating the typical world were very apparent to us all.  I needed the boys’ help to get out of the sitting position most places and Rolf’s help getting off the toilet and in/out of the shower.  As the week wore on, I felt my speech and body maneuvering slower and it was stressful to battle the crowds all day, every day.  I’m hoping a few days in bed will help me bounce back a bit but regardless, it was worth all the effort to go.  I love my family…I love doing life with them…and I love them even more as we journey ALS together.  Thank you, Dream Foundation, for making this trip possible.  Thank you, dear friends, for all the “extras” that made this trip even more memorable.  Thank you, family, for rolling with the punches, making our ever-changing life together look effortless and normal and for making me laugh.  There is so much for which to be grateful.  #iamblessed

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Thank you all!!
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There is much that inspires in a place so diverse, so big, so active!

Big Apple Dreams

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Last day of 10th grade!!!

Max and I picked up “10th grade Olivia” from school for the last time on Thursday which marked the official start of summer in the Geyling household!  Yay!!  Then, we welcomed Wilson home on Saturday morning after he successfully completing Air Assault School in Hawaii!  Woo Hoo!!  THEN, Wilson’s girlfriend came for a quick visit which led to a spontaneous swim party and a couple of late night living room movie nights!  Good Times!!  Summer is here.

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Way to go Wilson!
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Summertime Livin’ with friends!

In the midst of all that fun, we got a special visit from representatives of the Dream Foundation – a non profit, wish granting organization for terminally ill adults headquartered here in Santa Barbara.  My hospice case worker initiated the dream application a couple of months ago and thanks to the hard work of DFs staff and supporters, our family is being gifted a trip to New York City!  Rolf was in NYC on business nearly 12 years ago, I haven’t been in 30 years and the kids have never been…it’ll be an epic adventure for sure.  We’ll take in a couple of Broadway musicals, the boys will get to see U2 at Madison Square Garden, Olivia is excited to go to a live taping of Good Morning America, Rolf is working hard to secure tickets to fulfill his dream of seeing Bruce on Broadway and I’m looking forward to reenacting the iconic opening scene of “Breakfast At Tiffany’s” on 5th Avenue while humming Henry Mancini’s “Moon River”!  Ha Ha 😉  Mostly I’m excited to sit back and soak it all up…the sights, the sounds, the food, our kids’ reactions to the Big Apple and all the shared moments.

We recognize, maybe more than most, the impact this kind of experience can have on a family in our situation because we’ve lived it before.  You may recall that Rudy was granted a wish from the Make A Wish Foundation back in 2013…which I described here.

Not to sound boastful but we get it.

We know how to pace ourselves and maximize every moment all at the same time.

We know how important it is to make and store up lots of vivid memories.

We know it’s more than a vacation.

We know it’s a walk on sacred ground.

It feels quite strange to be going on another wish trip and I’m surprised by how sensitive or self-conscience I’m feeling about it…like with with Rudy, I wish we didn’t qualify…but, on the other hand, because we’re experienced wish receivers, we know what it takes to make something like this happen and we don’t take any of it for granted.  We are so grateful for the generous acts of love and compassion that have been extended to our family over the years by so many.  At the end of Rudy’s wish trip blog post, I expressed my hope to pay it forward in the future…I feel the same about this trip too.  Stay tuned for a fun recap in the coming weeks!  🙂

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‘So grateful to Alex and Mark from the Dream Foundation for their hard work and trip packet presentation.
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My hospice angels…case worker Tianna and counselor Ginny.
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From the looks of it, the kids would have been perfectly content with just the UGG blanket that we were given along with a basket of UGG/Teva/Sanuk walking shoes. Seriously, this blanket is sooooo soft!
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Thank you, in advance, Dream Foundation for what WE KNOW will be a fun and impactful experience for our whole family.
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I used Wilson and Kyla as practice models while learning how to use new photo features on my IPhone. 😉

Looking for Rainbows

Have you heard of the term “rainbow baby”?  It’s official definition is this…

A rainbow baby is a baby born shortly after the loss of a previous baby due to miscarriage, stillbirth, or death in infancy. This term is given to these special rainbow babies because a rainbow typically follows a storm, giving us hope of what’s to come.

…but I would extend that definition to the birth of a baby born after the loss of a child at any age.

I shared about rainbow babies before on Rudy’s Beat back in 2012.  It’s kind of shocking to read that post now and reflect on the number of kids that have passed since Katie, Josiah and Logan…we can now add Daisy, Gwendolyn, Moriah and Rudy to that list.  😦 And we’ve watched every one of these families go on to have their rainbow after the storm…some of the babies were planned and some were a surprise but in every case, it’s been an amazing joy to watch these families experience the birth of another child and the renewal that comes with it…although the memory of all our lost friends will never fade, watching their brothers and sisters arrive over the years, even from a distance, and sharing in the joy of their existence, even from a distance, has been a sweet breath of fresh air in the midst of so much loss and pain for so many.

It did cross my mind from time to time that given my age when I had Rudy, if anything ever happened to him, it would be highly unlikely that our family would experience the blessing of a rainbow baby.  I didn’t dwell on it but, I admit, it did make the thought of losing Rudy more threatening.  If we lost him, that would be it!  But then again, maybe our rainbow would come in the form of an adoption or maybe that breath of fresh air would come with grandchildren down the line.  (Ok, maybe I did dwell on it a bit!)  The point is, I was catching a vision for rainbows in the life of our family to come in a variety of ways.

Some good friends of ours were expecting their first baby last spring and looking ahead to their childcare options.  I felt compelled to offer my services…they needed the help and I thought it would be good for Rudy to be the “big guy” for a change and learn to care for others so the arrangement had the potential to be a “win for win” for all of us.  Rudy died 10 days after our new friend, Levi, was born.  Even in the days that followed Rudy’s passing, I felt strongly that I needed to honor my childcare commitment.  As I prayed about it, I wondered if little Levi might end up being a unique rainbow baby in my journey through grief and part of my healing process…seemed logical.   Then came ALS and it was clear that I had to let go of Levi too.

I think I’ve been looking for/longing for that darn rainbow ever since.  If ALS wasn’t in the picture, I’m certain I’d be able to identify my rainbow but options for that breath of fresh air, that sense of renewal, the hope of what’s to come seem really, really limited right now…figuratively AND literally!  I couldn’t have ever predicted, in all those times I thought about losing Rudy and fretted over what that would mean for our future/my future, that the storm would gain momentum after Rudy’s death, that I would have to ride it out for the rest of my life and…not see the rainbow once the storm ended.  It still boggles my mind.  I think it will boggle my mind until the day I die.  I’ll keep writing about it, though…I’ll come at it from all different angles…I’ll try to make sense of it because my mind is wired that way…but I guess my hope is that in the process of trying to do the impossible, I’ll land on some helpful insights that can be understood in this lifetime and will, even for a split second, be a breath of fresh air for a weary, storm-weathered soul.

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Rudy and Levi meeting for the first time.

 

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Already so eager to show him the ropes!
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A little Levi love for me last fall!

My friend Scott has been helping me transfer all the cassette tapes some friends and I recorded 25+ years ago to digital copies.  He emailed me another batch this morning that included a lullaby I wrote when my now almost 28 year old niece was born.  Seems kind of fitting to reintroduce it here with all this talk of babies…:)

Timeless Love of Christ (with Grace VanNortwick)

 

Simple Pleasures

It has been pretty quiet around here.  Wilson is still in Hawaii for Air Assault School and returns on Saturday.  He has successfully passed two out of three phases and says the training is “no joke” but is enjoying the challenge.  Max has picked up a few shifts at Kyle’s and is quite helpful to me during the day when he is home.  Olivia couldn’t be MORE ready for school to be over…poor girl just has to hang in there 3 more days!!!  It finally started to feel like summer this past weekend and I’m ready for our summer break to officially begin too.

We had our first family pool party of the season this weekend.  Rolf and Max jumped in to cool off after a day of plumbing and because I was on a two day break between infusions, I jumped in too and it felt wonderful!  The weightlessness is the best and the gentle, no-impact movements of my arms and legs in our warm pool water is so therapeutic.  It’s such a simple but deeply impactful pleasure.  I actually got lost in feelings of normalcy as I floated around in the pool hammock.  It all felt normal until it was time to get out.  I don’t have enough arm strength to hoist myself onto the pool edge and once I’m on the edge, I can’t get myself to a standing position.  So, I’ll have to limit my pool play to when Rolf or the big boys are home to help me.  Getting out of the pool is a bit of a humbling process, for sure, but I’m determined to not let that stop me from enjoying our pool this summer.  🙂  Yay Summer!!!

We are giving some thought to how we’d like to approach July 25th and honor Rudy on the anniversary of his passing.   Rolf and I have decided to keep the day itself pretty simple but would like to invite our friends and family to participate by honoring Rudy with one of his simple pleasures.  We invite anyone who wants to to send Rudy a Lightening McQueen car that we’ll place on his headstone track on the 25th.  We’re hoping to have a big pile to display which would have delighted Rudy to no end.  Oh, how he LOVED to play with his Lightening McQueen cars!  I also have a replenished supply of “Pay It Forward for Rudy” cards so if you’d like one/some to use on the 25th specifically, let me know how many you’d like and I’ll drop ’em in the mail to you.  We don’t necessarily want to make a big deal out of this first anniversary but we do want to be thoughtful in the ways we remember our boy.  Thank you for walking this road of grief with us and loving our family in it…we love you right back!

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Send us a Lightening McQueen car and we’ll send you a limited edition Rudy pen…in your choice of “Rudy Blue” or “Lightening McQueen Red”!
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In this past month of missing all the end of the school year fun with Rudy, I was especially tickled to get this photo from one of Rudy’s special ed teachers last week. She said she found it while cleaning out her classroom and it just might be my new favorite picture! Thanks “A A” 😉

 

 

This Time Last Year

It’s May 25th today.  It not only marks 10 months since Rudy died, it’s also the start of the long Memorial Day Weekend which means the house has emptied out.  Oma flew back home on Wednesday after her weeklong visit, Wilson left yesterday for Air Assault School in Hawaii, Max left on the train later in the day for Point Loma and Olivia left this morning with her youth group to meet up with Max at Point Loma for an annual youth conference.  Everybody is off doing great, much-anticipated things and that’s super fun.

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Fun with Oma!

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Sending Wilson off!

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I’m not sure if it’s because we’re getting closer to the 1 year anniversary of Rudy’s passing or not but I’m starting to get preoccupied with “this time last year” memories.  Up until now, my missing of Rudy (especially on holidays) has been fairly general with quick flashes of specific moments…missing his presence mostly and being flooded with a wide range of memories from all his birthdays or many Christmases or the various Easter scavenger hunts he participated in.  In the past couple of weeks, though, I’ve kinda been haunted by memories of last year specifically.  I suppose part of that is due to the fact that how I’ve spent my time this spring is dramatically different without Rudy here…I’ve missed all the end-of-the-school-year activities with Rudy like the Special Olympics Spring Track Meet, the school open house where he showed us all his fun projects, the bowling trip to Zodo’s with his special ed classmates, our annual teacher appreciation dinner, all the field trips and parties, etc.  Oh, I’ve missed it all and the people with whom I did it all.

The memories of this weekend last year are particularly vivid…it was so full…Rolf was working on a bathroom remodel so Rudy and I busied ourselves with a trip to the grand opening of the downtown Kyle’s Kitchen and then went to a friend’s baby dedication and, of course, we spent Sunday watching the Indianapolis 500 which was Rudy’s very favorite.  I can remember random details about the weekend, what he was wearing and the toys he insisted carrying around with him.  My mind is definitely shifting toward a more specific focus as it relates to memories of Rudy and I suspect that focus will become even sharper as we approach July 25th.  Ooooo, tough days ahead.

This Memorial Day Weekend is also a bit of a de ja vu when it comes to house projects.  You may remember that Rolf demolished and rebuilt half of our primary bathroom over the long weekend last year.

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Rolf and Rudy working hard in 2017

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He got as far as the sink, custom countertop and vanity but had to stop there as we were getting ready to host family and friends for Max’s graduation and needed a working bathroom.  The plan was to finish the whole bathroom remodel when the house emptied out again during the summer…well, the project has gone untouched since.  Rolf kind of lost his remodel mojo and I haven’t had the mental energy to tolerate the upheaval either.  However, it’s time to get it done and Rolf is going to resume demolition tomorrow.  Interesting to note, the major project delay is turning out to be fortunate timing for us as we will be doing modifications necessary for me down the line that we wouldn’t have done originally and the benefit of that isn’t lost on me and Rolf.  I’ve always been grateful for Rolf and his excellent thought, planning and execution of projects on behalf of our family over the years and that is especially true of this bathroom project.  The alternative modifications aren’t fun details to think through but he’s doing all the thinking for us and making it happen.  Thanks Rolfi.

Speaking of “this time last year”, this is what Rudy was doing on May 25, 2017…a duet with his sister.

Good job Rudy.

 

Another Reality Check

I had my swallow test at the hospital yesterday.  It was one of those “to dos” that I wasn’t motivated to do.  I find the ongoing tests and evaluations in this journey distressing because I go into them knowing they’ll highlight the progression of the disease without offering a cure or real solution…and that’s just plain depressing.  As wonderful as my team of medical professionals is, the nature of the consults are bubble bursters in my ongoing effort to remain optimistic and see the glass as half full.  🙂

The information gathered from swallow tests specifically helps to determine when a feeding tube will be necessary.  Ugh!  When I was first diagnosed in September, I knew enough about ALS to know feeding tubes and breathing tubes are part of the ALS journey but, to be honest, my gut feeling about how I wanted to approach this disease at that time was to do it naturally…to let it take it’s course naturally…and not intervene.  Well, now I’m confused because when I envisioned having to decide whether or not I’d get a feeding tube, I pictured being bed ridden and having poor quality of life…why prolong that scenario?  That certainly isn’t the case now and the factors in deciding to get a feeding tube aren’t so black and white.  The decision to get a feeding tube is not just based on whether or not the mechanics work but also on the amount of effort it takes to eat.  Although I can still chew and swallow, it is taking me longer and longer to eat.  I really have to focus on chewing and swallowing and eventually the effort to do so will be too much.  I honestly didn’t think I’d be engaged in discussions about feeding tubes this early on in the process.  Some suggest getting the feeding tube sooner rather than later to get used to it before you’re dependent on it.  I’m not there yet.  I’m still not sure how I feel about it.  My speech pathologist said I’ll know when I’m ready and I’m counting on that.  Ongoing prayers for ALS to be completely lifted from me are greatly appreciated but, in the meantime, prayers for a supernatural ability to continue eating naturally and discernment in the process of the disease as a whole are coveted too.

As much as I hated to get the swallow test done yesterday, there were a couple of silver linings…

  1. My friend Bob was my xray tech during the test…

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2. And look how Rudy showed up!!!  My hummingbird earring was captured in the xray video…perfectly perched front and center keeping an eye on things.  🙂  I love that.  Hi Rudy!

My next reality check will be a lung function test with the pulmonologist next week but after that, we’ll get a break from any BIG discussions until my next appointment with the neurologist next month.  In the meantime, we’ll have some fun with Oma who arrives today for a weeklong visit.  Thank you for the Mother’s Day love and encouraging notes/comments/messages and thank you for persevering in prayer with us!!!!  How very grateful I am!!!