Although the thought of waiting another 5-6 months for the Glenn conjures up some anxiety, it does mean we have another summer at home under one roof and that is a huge blessing…priceless time! The time we spend waiting can be filled with alot of playing! We got a jump start on the summer with a rare trip to the park yesterday. The park we went to had a perfect swing for Rudy and he had some special outdoor time with his gal pal Stella:
I know waiting is the best option for Rudy’s lungs as we want to give them time to grow and heal. But so often in this journey (as is true in most health crisis situations, I suppose) it feels like the necessary treatments require a sacrifice of one thing for the well being of another. One of my big concerns for Rudy in waiting for his heart surgery is how it will effect his overall development. Rudy is actually due for his 18 month assessment later this month with the OT/PT services we receive and it will be interesting to see where his developmental delay falls in general but since he still isn’t sitting on his own or bearing much of his weight, there are some areas where I guess he is still registering in the 3-5 month range. The longer we wait, the deeper the hole he’ll have to climb out of so to speak! ‘Just opens up alot of questions for me…will he catch up?…how long will it be before he sits up…crawls…walks? Will there be a day when we put a spoon to his mouth and he doesn’t gag…when he’ll be able to feed himself?! Now that Rudy is transitioning from being a baby to a toddler it’s hard to not look down the road (something I’ve made a conscious effort NOT to do the past 18 months) and wonder.
I must add, however, that even though Rudy’s delays are becoming more and more obvious the bigger he gets, we don’t overlook or take for granted the huge steps forward he has taken…just this past week Rudy tolerated being on his stomach for a few minutes during his therapy session which gave us cause to celebrate! We’re also enjoying seeing his happy personality emerge more and more…he’s a bit of goof ball, too, as you can see in the following video:
With the added therapeutic-play benefit of having brothers and sister home during the summer, we’ll no doubt see progress in the areas of Wii playing, drum pounding and craft making! 🙂 Baby steps…