It’s official! As of 1:50pm this afternoon, we have a teenager in the house…Wilson turned 13 today!! We enjoyed a family celebration tonight at Palazzio’s (Wilson’s choice) for dinner and then we walked down State St. to Rite Aid for ice cream. In between, we made a quick trip to Wilson’s “happiest place on earth”…no, not Disneyland but Borders bookstore…where Wilson happily spent some of his bday money and now he and Rolf are watching a late night showing of “Clash of the Titans” in 3D at the Arlington! A super end to a full week of settling back in and catching up on Dr. appointments…
In a nutshell, it looks like Rudy weathered the trip well as everything checked out stable this week. We saw Rudy’s pulmonologist at UCLA on Tuesday and he was pleased to see Rudy so animated and active. He remains optimistic that his lungs will improve in time and was encouraged by Rudy’s general condition. At 29 pounds 9 0z, Rudy shot up to the 90th percentile for weight but remains at the 10-25th percentile for height (31in) so we’re cutting back on his feeds a bit. The other big development is the addition of a Passey-Muir valve. It’s an attachment that will go on Rudy’s trach allowing him to vocalize. We’re so excited and hope that Apria is uncharacteristically efficient in processing the prescription so we can get started teaching Rudy how to talk!!! Ha Ha
Dr. Harake confirmed today through Rudy’s monthly echo that his heart is stable…no significant changes. This is good news and allows us to give Rudy’s lungs more time to heal. In fact, if the heart remains stable, Dr. Harake won’t schedule the next heart cath before September…giving the pulmonary hypertension drugs a full 6 months to do their magic. Based on some earlier conversations, I had in mind that we would possibly move forward toward the Glenn over the summer so today’s information requires another mental adjustment for me but I know that in the long run waiting is the better option for Rudy’s lungs and, prayerfully, heart. In retrospect we’ll look back on all this and see the wisdom in God’s timing…right? 🙂
But, for now, it’s all about celebrating Wilson (You’re so fun to celebrate Wil!) and enjoying the fabulous weekend we have ahead of us! ‘Wishing you all a restful weekend too!!!