I’m not sure words can adequately express what the past few days have been like…as a result, Rolf and I have been putting together a couple of slideshows that we will post soon that we feel capture a bit of what our hearts are experiencing. As expected, having Rudy home has been a big adjustment but in a real positive way. He has actually slept through the night the two nights he has been at home…so we’re not as sleep deprived as one would expect!!!! He gets his last meds at 12 midnight which is when Rolf puts him on the feeding pump (the pump feeds him continually throughout the night) until 6am when we take him off the pump and give him his 6am meds. So that gives us 6 hours of solid sleep which isn’t bad! Ha Ha
I’ve spent the past two days trying to find a place for everything…what WAS a very organized changing table with neatly placed diapers and wipes has been cleared off to house all of Rudy’s medical supplies and equipment. For now Rudy has a corner of our room so until I find a good storage spot for everything our room looks more like a medical supply warehouse than a bedroom. His crib is warm and cozy, though, and he seems to like it alot.
The kids are sweet with him and visibly excited to have him home but they are sensitive to give him space and not overwhelm him. I’m not as nervous as I thought I’d be in caring for Rudy but, I admit, I’m not too eager to leave the security of our home. Rudy has his first pediatrician appt. this afternoon so that will be our first outing. I’m still trying to get a handle on his schedule…He feeds every 3 hours, he has a total of 13 meds he takes at different intervals throughout the day and we have to make sure we get his trach and g-tube cleaning/care done each day. It feels pretty non-stop at this point but I’m sure it will all become second nature and we’ll settle into a nice routine…there will be a day when drawing his meds, alone, won’t take me 20 minutes!
So, we continue to take life one day at a time…praying for wisdom, discernment and AN ABUNDANCE of GRACE as we all let down a bit after the adrenaline rush of the past 6 months. I still feel like I’m on that raft adrift at sea but no longer on the open, choppy waters…now it feels like we’re cruising along the coast in sight of land!
Stay tuned for the pics we’ve promised!!!!!