Clinton Rudolf Geyling (10/1/2008-7/25/2017)

Beloved son, brother, grandson, nephew, cousin, friend, student, robot and pig, our Rudy’s joyful and miraculous journey with us has come to an end. 

Even knowing that he would face enormous challenges before he was born didn’t prepare us for the magnitude of the battle that lay ahead. While acute medical issues were ever-present in his life, Rudy will be remembered more by his ability to overcome limitations and embrace life with joy and abandon. Against a backdrop of uncertainty, heartbreak and occasional terror, Rudy’s life gave us glimpses of God’s goodness and beauty we never conceived this world could hold. 

Rudy leaves behind a family that loved him deeply: parents, Rolf and Trish, the siblings he adored, Wilson, Max and Olivia, grandmothers JoAn Wilson (Lawrence, KS) and Helga Geyling (Auburn, AL) and numerous aunts, uncles, cousins and extended family across the U.S. and Europe. 

One could live 100 years and not experience the depth of love Rudy received in eight and a half years. We are grateful for people near and far who poured such incredible love into Rudy including: the family of Coast Community Church of the Nazarene, Mountain View School and dedicated professionals in the Goleta and SB County school districts, gifted doctors and compassionate medical providers in Santa Barbara and at UCLA Mattel Children’s Hospital, the caring community of the Santa Barbara Rescue Mission, our courageous cadre of special needs families and countless neighbors, friends, blog readers and even perfect strangers–all of whom discovered that even the simplest care extended to him was reciprocated with an uncannily disproportionate outpouring of his unique brand of Rudy-love. 

Viewing and visitation will be Sunday August 6th from 3-7pm at Coast Community Church of the Nazarene (4973 Via Los Santos, Santa Barbara, CA 93111). Funeral service will be on Monday August 7th, 11am at Living Faith Church (4597 Hollister Avenue, Santa Barbara, CA 93110–carpooling recommended). Burial and family receiving immediately to follow the service at Goleta Cemetery (44 S San Antonio Rd, Santa Barbara, CA 93110). All are welcome wearing bright colors, especially Rudy blue (aqua blue).

Memorial donations in Rudy’s honor can be made to the Santa Barbara Rescue Mission (535 E. Yanonali, Santa Barbara, CA, 93103), a very special place to Rudy and our family. 

Something I want to remember

Dear friends,

So much to feel and so much to sort through in our heads and hearts. Much as I want to start this off with assurances that we’re all right, that’d be lying. We are crushed and aching. Most accurate to say that we have some “OK moments”. We are grateful to be together as a family and with extended family.

We’ve so appreciated all the posts and messages–more than we could ever respond to. Such care for our family and a testament of the love that marked Rudy’s life.

As I’ve got a moment where I feel clear-headed enough to write, I want to remind myself of the beauty of Rudy’s last moments. The long-awaited family adventure driving across the southwest to Kansas. In his trademark relentlessness, for weeks there was the daily barrage of “I go Grandma’s house now?” several times an hour.

Travel day started with church, where Rudy felt so safe and loved. He chose to go sit with some teen boys. Having gotten the usual “Go away, Dad!” I sat by myself while the musically talented members of the family (everyone else) led worship. Was so touched to get glimpses across several rows of attentive pats on his back, kids familiar enough with his O2 setup to be adjusting tubes and keeping it from getting tangled, whispers and gestures to keep him mostly quiet.

Then the van adventure was on. Time together seeing new places, laughing and dozing in the van. Deploying in and out of rest stops and hotels–with the rotating care for Rudy that’s just been part of life for our family.

We didn’t know Monday was going to be our last day with Rudy, but so glad it turned out the way it did. At our quick stop to see a corner in Winslow, AZ, Rudy was giddy to pick out a shiny blue truck. As the clerk picked up on his enthusiasm for Cars and Lightning McQueen she gave us directions to the Wigwam Hotel up the interstate in Holbrook–the inspiration for the movie’s Cozy Cone Motel.

Even as it was happening, I knew I’d never forget it. Our little boy squealing as he scurried around the muddy gravel parking lot of the kitschy little place with its eclectic assortment of cars. Many of them didn’t appear to run and most barely looked anything like the movie characters but that didn’t stop his identifying them as such. “Look! Hudson! Doc! Sarge! Fillmore! Ramon! Mater!”

He would run himself breathless, ask to be carried and just as quickly demand to walk again. A maid even let him go inside one of the rooms to check it out. Heard his newest expression “I’m so excited!!!” many times. The big sibs entered into the experience like they always do, taking turns holding his hand, the oxygen concentrator and carrying him when he needed it. Gave Trish and I the chance to have one of those “Did you ever think we’d see our little boy doing this?” moments.

I’m so glad we were aware of this and so glad that this was what marked Rudy’s last days with us: being immersed in the love of the family smitten with him and being rendered breathless by his ability to extract more joy from a moment than any of us ever could.

We’ve seen things more beautiful than we ever knew existed. The weight of losing this is unbearable. So grateful for people who’ve walked with us and trusting that this will be what God uses to lead us from here.

More when we can.

Rolf

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All done!

Got buzzed shortly after the last post and figured it would just be the lab giving a status update. Discovered Dr. Dan was ready to give his report. No time to elaborate on that but the term “ridiculously good” was used repeatedly.  Not used to hearing that in a cath conference, so we’re a little bewildered.

We just got back to Rudy in recovery.  Leave it to the little champion to be here smiling and making little pig snorts as he comes out from under anesthesia! If things keep going smoothly we should be on our way home tonight. 

Checked in, Rolled and waiting 

A brief update while we’ve got time to post:  we had a 9am check-in here at UCLA so we were glad to be spared having to roll in the wee hours. We opted for the slightly longer drive down the coast (as we often do) as it just feels like a more peaceful start to a day like today. 

Demonstrating his ability to get excited about anything, Rudy asked repeatedly if he could bring wear his McQueen backpack and slippers to the hospital (and wore them for hours last evening after packing his toys).  Walked into the hospital like a boss. 


After check-in we moved to pre-op and got check-ins from the docs and kept Rudy occupied until they rolled him to the lab just before 1pm.  Gave us a thumbs up before he went through the doors:


Been close to three hours and we expect it to be quite a while longer. We’re OK with them taking their time. Thanks for keeping Rudy in your prayers.