I heard from a few subscribers today about no update going out last night. Sorry about that–we didn’t get the post up before the automated send deadline. Thanks for your dedicated reading. I noticed today on our stats site that Rudy’s Beat crossed over 25,000 hits today. Wow, that’s amazing! The support and interest in our little warrior is overwhelming.
We had decided not to mention the possibility of extubating Rudy this morning as I’m not sure how many nights we’ve left with that being the plan only to have a change in course overnight. Unfortunately, that was the case again. Rudy had a great day yesterday–alert with consistent numbers where they all should be–so they were going to steadily dial down the vent overnight to see if they could get to 8 bpm by 6am. A routine chest Xray at 4am (if there is anything routine about an Xray at 4am) showed a plural effusion on his right side–fluid on his lungs. The drain on that side had fallen out yesterday and the team decided not to replace it, but took the course of monitoring things closely.
The good news is that the accumlating fluid was detected quickly before other signs of distress kicked in. The ventilator was bumped back up and he underwent a procedure this morning to install a new drain (more generic bears again). All of the numbers have held fairly well during the day, so the main issues we had to overcome were the sedation that knocked him out most of the day and the always closely-monitored flow of urine. We’re still waiting for the latter to come back where it needs to be to let us know his kidneys are OK, but we’re glad that Rudy woke up and joined us again about an hour ago–the good kind of awake, where he can focus and looks at me with quiet, patient but questioning eyes. We can drive ourselves crazy if we focus too much on getting that horrible tube out of his mouth. Tomorrow!? Tomorrow!? Tomorrow!? Dr. Harrison came on today and like everyone else, he’s optimistic but wisely non-committal as to a timeline. I was able to extract a promise from him that it’ll certainly be out by Rudy’s first day of kindergarten.
We’ve noticed a respectful debate emerging between the Cardiology and the ICU docs regarding Rudy and the ventilator. The former would want a quicker wean while the latter argue for a more gradual process (Note–if Reemtsen ever teaches swimming lessons, verify that his pool has a shallow end before you sign up your kids). I am grateful that multiple minds, each holding their own perspectives, are involved in this key discussion.
UPDATE–THIS JUST IN!!! As I’ve been typing Dr. Mary (pronounced as the French–“Marie”) came in and discovered 10ml in the pee tube. Yahoo! She also reported that Dr. Harrison feels that Rudy is far enough out of the woods on any intestinal issues that they can start some powerful medication for his chylothorax (the liquid that keeps collecting on his chest). This will hopefully stop the fluid from collecting over the next few days so we can get rid of the drains and reduce the risk of infection from them.
We said goodbye to Robin and “Papa”, her baby boy, today. They arrived just a few days after us from Lompoc and were part of our temporary community that formed here over the last month in the ICU. We feel a bit like year-round residents in a resort community of some kind. The neighbors come and go every few days, but we’re still here. We wave to them from the front porch as they drive away. Blessings, peace and health to you, Robin and Papa!
7 thoughts on “He’ll be off the ventilator by Kindergarten…”
Rolf and Trish… Rest assured, one day, you will be the one walking out of the NICU with your baby in your arms ! 🙂
Our God is amazing, and an army of prayer warriors are pleading his case in front of Him…
Much love from Kentucky !
Faith and Richard Groves
Guess I”m in the Reesten camp….where’s Ty? Remove those tubes!!!
25,000 hits…you should start selling banner ad space!
Love you guys!!
To pull or not to pull, that is the question! We’ve found that neither camp is ever totally right…or wrong. Balance seems to be the key in the care of our kids but unfortunately the tubes can’t be half in. All I can say is that in the last 5 months I’ve found that medicine is far more of an art than a science! No matter what they decide, be vigilant, be alert, and pray pray pray! Here’s hoping to a lot more steps forward and fewer steps back.
(on a side note, what would we do in the ICU if we didn’t have internet?…I’d be even crazier than I feel like I am slowly becoming)
Lord Jesus, We pray you hold back infection, and grow Rudy’s little lungs strong and bring him breath on his own! Lord, Rolf and Trish ACHE to hold him, and I know Rudy aches to be held. Bring Rudy to the place to have the tubes removed as he can just be held! In the meantime Father, we thank you that you are holding him in your arms!
Good morning, Rudy, Happy Halloween. your sister and brothers were up at 6 am, dont know why.
They just saw the picture with your bright eyes, wishing you could go trick or treating with them.
Well, precious child we wish you a bright eyed day.
May the Lord hold you tightly in his arms and make your lungs strong.
We love you Oma Opa
While I am “Katie’s Nana” (La Patera first grader), I am also a solo nurse anesthetist in a remote Army hospital in the Marshall Islands. Rudy’s Beat is the first thing that I read each morning. The pictures along with your narrative are great. Some mornings I cry and some mornings I laugh out loud. All mornings I pray for Rudy’s path to wellness be guided by the best decisions his physicians can make with God’s help.
“Tomorrow is only a day away.”
With love, Katie’s Nana
Good Morning Trish and Rolf! and Little Rudy. I am so happy to see his little face today and I continue to pray for you all! I am just one of the 25,000. Amazing isn’t it!