Thanks so much for the kind messages and comments in response to our last post. It’s overwhelming in a good way and even though we can’t reply to almost any of them, it is a huge comfort to know the incredible group of people near and far who are walking with us in this.
More than once this past two weeks, it’s been explained to me that “hospice is about more than just the end of life”. Seems like a re-branding campaign that cratered before even reaching the end of the runway. This isn’t all happening because Trish is under the weather. The disease is visibly very present and progressing; seemingly robbing of her something everyday. Cynicism aside, we are so grateful for skilled and compassionate guides walking us through scary and unfamiliar territory–much like those who came around us with a critically ill child.
The emphasis has been on keeping Trish comfortable and we’re so grateful that we’re able to do that here at home…but that doesn’t mean we were completely confined there. Last weekend Olivia had a lacrosse tournament and I guess it would take something more than being on hospice to keep Trish away.
Olivia’s week went from Beast to Beauty as this last Friday was the Homecoming Football game. As most probably already know from social media posts, it turned out to be a storybook night…
Hard to sum up such a week of extremes, but we’re just embracing whatever life throws at us. It seems weird to have celebration alongside such struggle but that’s also what’s making it bearable.