Since getting the UCLA appointments booked for tomorrow and next Tuesday, Trish and I both admit to an undercurrent of dread and anxiety. The fact that both the Transplant Clinic and Heart Cath only got booked late last week–really short-notice when we’re used to dealing with months of lead time–minimizes the amount of time for brooding but can also create new reasons for worry. Is there some reason why they feel it necessary to see Rudy so quickly? The office mentioned summer vacation schedules but even with this, you can’t help but wonder if there’s something everyone’s concerned about that couldn’t wait until the fall. Or maybe they just had a cancellation and figured they’d squeeze us in cuz they like us and we should stop over-thinking things…
So we made it through the weekend as much as possible by focusing on the here and now–which, when I think about it, is how we’ve learned to navigate life. Rudy’s heart condition and it’s prognosis is always there, even if we only become more focused on it as there’s an appointment or procedure looming. But life goes on with all it’s mundane beauty and simple celebrations of the ordinary–made only more moving when we consider the backdrop.
On this note, we had a pretty big celebration yesterday evening when Rudy figured out something HUGE. Too bad the big sibs weren’t here for it–they may not be able to catch him by the time they’re home!
Pretty easy to focus on what’s going on right now when it’s something like this. Thanks for praying for our time at UCLA tomorrow.