It’s 1:30am and the good news is that Rudy doesn’t need to be admitted so we should be on our way in about 30 minutes. The bad news is that the CAT scan showed good evidence for why there would be seizures. The doc took lots of time to explain it to us but, given that our specialty is single-ventricle hearts, being introduced to neurology at 12:50am does not make for good retention. Something’s smaller than it should be…other things are bigger than they should be. Ugh (I’m finding it hard not to type any number of choice expletives right now. I just wish Rudy would get a break on this one.). They have an anti-convulsant drug that will do something that makes everyone comfortable with sending him home.
We do recall the team at UCLA saying that the long battle in the ICU and a lifetime of poor oxygenation can impact neurologic function. The cat scan shows areas of calcification that are consistent with stroke history. The ER doc wondered why something like this hadn’t happened sooner. We’re leaving with a referral that welcomes a new member to the team–a Pediatric Neurologist. They say she’s a good one. The Rudycoaster loops again.
Thanks for praying.
Rudy's Beat 
Rudy – surrounded by love and light from NYC and all over.
Ugh!! Will be praying for Rudy – and all of you.
Rolf & Trish, I am so sorry that you had such a rough night. We, too were introduced to the world of neurology in the middle of the night like that. I am happy to be a resource for you as we have seen both of the ped neuros in town. Call if you would like. Glad to hear you headed home. Praying…
Oh wow, so sorry to hear about Rudy’s new complications. Praying for all of you as you head down this new road.
Oh no, praying for Rudy and for your family. This had to be so scary. Glad you have such a great healthcare team.
More prayers going up for all of you! But especially for Rudy!!
That makes me so sad. I’m so sorry to hear that. I’m praying for you all!
So scary! I can’t imagine your frustration…Rudy does deserve a break! I hope you get a great neurologist who can get to the bottom of this. Praying always for our buddy Rudy. Owen always watches his videos over and over again.
It occurs to me that sometimes the Rudycoaster is like the Spinning Dragon ride at our local amusement park where the “cars” not only follow a rollercoaster track but also spin around uncontrollably…I really don’t like that ride and imagine you feel the same way about this little “spin” around the ER. Lifting you all up in prayer as you take another wild turn on the Rudycoaster!! Love you!!
Praying for peace and comfort in this hour of uncertainty.
I’m praying for you all. So sorry to hear Rudy (and the rest of you) had to go through this. May God be known to you.
Praying for you guys…seizures are no fun. Praying that treatment paths open up or that Rudy can just heal! Love to all…
Many prayers going up for you all today~ Blessings on this treasure of a boy. Much love~
Prayers are going up for ALL of you as you tread this new path. Love you!
Oh no!
As always, thinking about Rudy and your family.
I’m glad to hear that you are on your way home.
Many prayers coming your way.
Rudy is hugged in Prayer
God brought you to mind on my way home from work and now I understand….Oh….we hurt with you! Yes, Rudy has had enough….Lord, have mercy! Lots of love and prayers!!
Just joining in with all the others who are lifting Rudy and you all up to the throne. Peace and good rest tonight! the MN brews
So many prayers lift you to the eyes of the Lord every day and night. As long as you don’t use any number of choice expletives on your children, everybody who knows you is praying for you. Just always remember that when I was little, you were always a better tickle couch than Uncle Alex. No offense Uncle Alex.