It’s 1:30am and the good news is that Rudy doesn’t need to be admitted so we should be on our way in about 30 minutes. The bad news is that the CAT scan showed good evidence for why there would be seizures. The doc took lots of time to explain it to us but, given that our specialty is single-ventricle hearts, being introduced to neurology at 12:50am does not make for good retention. Something’s smaller than it should be…other things are bigger than they should be. Ugh (I’m finding it hard not to type any number of choice expletives right now. I just wish Rudy would get a break on this one.). They have an anti-convulsant drug that will do something that makes everyone comfortable with sending him home.
We do recall the team at UCLA saying that the long battle in the ICU and a lifetime of poor oxygenation can impact neurologic function. The cat scan shows areas of calcification that are consistent with stroke history. The ER doc wondered why something like this hadn’t happened sooner. We’re leaving with a referral that welcomes a new member to the team–a Pediatric Neurologist. They say she’s a good one. The Rudycoaster loops again.
Thanks for praying.