Hello dear friends!!!!
The lack of posts this week is less an issue of having no information to share and more due to the fact that life with Rudy home is busy…leaving little time for any of the “extras” in our routine! I’m embarrassed to admit that I crashed on the couch well before the big kids’ bedtimes more than once this week. Ha Ha The adjustments continue, for sure, but the good news is that Rudy is doing well and enjoying life at home since his discharge last week.
Our week was filled with many appointments as a follow-up to his discharge. Everything is checking out okay. Rudy’s SB cardiologist feels his Glenn may need to be scheduled within the month. My prayer has always been to have Rudy home for a full 2 months before we engage in the next open heart surgery so I continue to hope we can put it off until July. A heart catheterization is scheduled for June 4th which will help determine when the Glenn should be scheduled.
One of Rudy’s appointments was with a pediatric eye MD in Ventura. There has always been concern about Rudy’s eyes wandering and, often times, fixated to the left. This was particularly evident when he was in the hospital but I’ve noticed a distinct improvement since we’ve had him home. The opthamologist feels there may be a need for surgery in the future but would like to give Rudy’s eyes a chance to strengthen and correct themselves. We’ll reevaluate in a couple of years. He’ll definitely need glasses which will be prescribed when he starts to walk but, otherwise, his eyes are healthy for which we’re very grateful!!
When we weren’t off to an appointment, I was home on the phone working to set up various services for Rudy and trying to navigate the whole insurance/medical services system. This is not one of my strengths so I probably made it more frustrating for myself than need be. I told Rolf last night that if taking care of Rudy is all that we had to do, the journey would be pretty simple…it’s all the logisitics and communication with outside agencies that complicates the process for me…a bit of a challenge for an introvert, I guess!
The older kids are starting to wind down their school year as the official countdown is on (just 3 more weeks!) and in that there are a ton of special school activities and programs to prepare for so they are quite busy, busy, busy!!! It’s pretty staggering to think about the fact that Rudy came just one month after school started and is settling in at home just one month before the school year ends – forget “where has this past week gone?”…where has the school year gone?!!!! Life is speeding by at rocket speed…with the Glenn just around the corner, I don’t imagine life will slow down anytime soon but I do welcome the lazier days of summer. 🙂