The surgical team came by early this morning to remove Rudy’s dressing for the first time since his early morning trip to the OR on Tuesday. The wound looks much better and there isn’t any sign of fluid leaking from it which is good. It’s just now he has these long stitches reinforced with rubber catheter tubing that make for a great conversation piece when folks drop by for a visit. CT Nurse Sara stopped in this morning and was quite impressed with his extra-long zipper extending from the top of his chest to down below his belly. As we were counting the number of scars his has on various parts of his body, I envisioned Rolf and I getting a call from Principal Santiago at the elementary school informing us that she had to call Rudy into her office to explain that it just isn’t appropriate to show off his scars to the kids on the playground…no matter how impressive they may be!
Rudy had a hard night last night as his numbers went all over the map…high heart rate (200+ even when he was asleep) and low sats which he hasn’t experienced for a few weeks! It was unsettling to me but he settled down today with higher doses of methadone. We’ll have to wean him off the meds again but, at this point, it’s best to let him rest comfortably. The pediatric team rounded this morning and the cardiac team rounded this afternoon…no specific plan-of-action has been proposed but everyone is in agreement that his wound needs to heal and that we need to see the fluid stop before we can move forward. The fluid output increased a little bit today compared to yesterday’s totals but that isn’t of great concern to the team.
It does seem to me that it’s taking Rudy longer to bounce back after this last surgical procedure…it has been a long week of waiting for him to stabilize and “wake up” but I have to keep reminding myself that, in general, he looks stronger than he did a month ago so he has made progress! Baby steps…baby steps…one day at a time!!!