Our little man had a sleepy day…just what the doctor ordered. With the help of pretty regular doses of meds, Rudy rested all day long. He even slept through a visit from Daddy! Rolf arrived at the hospital around 10:30am to see me and Rudy and check in with doctors. We didn’t do much…in fact, we pretty much sat quietly in Rudy’s room and dozed off a bit but we didn’t have to “do” anything. It was just great to be together and reassuring for both of us.
It was important for Rudy to continue to rest today. Dr. Judith (this week’s attending) wanted all of Rudy’s energy to go toward the healing of his stomach wound so everything else was put on hold…no vent weaning, no feeds, etc… They’ll, most likely, give him one more day of rest before starting the wean again. It’s definitely a balancing act because giving him time to rest is crucial right now but we also don’t want him to rest too long on the vent and lose significant ground on the weaning process. The GI team is recommending Rudy not be fed through his g-tube for approximately 2 weeks. This will hopefully give the lymphatic system time to heal and strengthen…after the 2-week break, Rudy will be fed a special formula with virtually no fat for about 6 weeks. If that goes well, then my milk can be introduced again. So, we’ve definitely hit a speed bump with the recurrance of this chylous fluid but everyone feels this won’t be as complicated as the chylothorax issue. We certainly pray this is true. It’s unclear how long this will delay our homecoming but we knew better than to get too attached to a specific timeline anyway. The waiting game continues. For now, I’m praying the fluid draining from his stomach cavity continues to decrease and that tomorrow he will have times of being awake and alert but comfortable at the same time. Thank you for your continued prayers for patience and healing!!! Rudy sure is getting quite a reputation as a trouble-maker…charming, no doubt, but a trouble-maker nonetheless. I keep telling Rudy to get it all out of his system during this hospital stay because I expect life at home to be calm and uneventful! Ha Ha