Rudy, Nurse Kelly and I had an early morning field trip down and over to nuclear radiology today for a “gastric emptying test”. RT Oscar and Fellow Julianne helped in the transport to a whole other building in the medical plaza through a basement corridor – quite an adventure. The test involved the tech putting 30 ccs of formula laced with a tracer into Rudy’s stomach through an NG tube in his nose. Then they put him under a scanner for 90 minutes and every 15 minutes they took a minute-long picture of his stomach to see if the stomach was emptying normally. The challenge was to keep him still as he didn’t get his morning pain meds in preparation for the test so I stood next to him holding his pacifier in place and stroking his hand the whole time…so sweet! The preliminary results indicate that Rudy’s stomach does have a delay in emptying. This is not a huge surprise but the question now is “why?” and “is this a permanent condition or just another one of Rudy’s systems that is slow to kick in?”. The next step is to do an Upper GI contrast test which is scheduled for tomorrow. It’s similar in that they’ll put formula mixed with contrast down his throat and watch it’s journey to the stomach via fluoroscopy looking for any obstruction. So, the information gathered from both tests will help determine the next step…most likely a GJ feeding tube that goes directly into the intestine through his side.
Like the trach, this is another treatment option explained to us a while back that we hoped Rudy’s journey wouldn’t come to but it looks like that may be where we are headed. From what I understand, a modified nursing schedule in conjunction with the feeding tube may still be an option if Rudy can learn to latch on so I’m praying to that end. This is a really full week for Rudy…an aggressive push to make some progress which is good but it’s also generating a ton of information to process. Not that we have many options but please pray for clarity of mind for me and Rolf as we digest each nugget of information comin’ our way…no pun intended! Please pray for Rudy’s comfort this week as well as he is being messed with a great deal while trying to heal from the tracheoscopy. Such a sweetie-pie!