The switch in “parent watch” occured today when Rolf passed the baton off to me in the hospital parking lot as the family headed home to SB. Rolf and Wilson had a great couple of days with Rudy over the weekend…Gpa Dick, Gma Jo, Max, Olivia and I made the trek down this morning for a little “family” time. Rudy was a bit unsettled when we arrived. Rolf was holding him and trying to calm him down. As he has several times in the past couple of weeks, Rudy got increasingly agitated. Rolf handed Rudy off to Gma Jo and he calmed down for a bit but soon started to get fussy again. Rolf took the children to our favorite skate park in L.A. for a little outdoor fun and while they were gone, Rudy’s heart rate spiked to 234 and his breathing got to 100 bpm…I’ve never seen those numbers that high. And as usually happens, he spiked a high fever and ultimately needed a couple of rescue doses of meds to get him calmed down. He finally fell asleep after working quite hard for a couple of hours and he has been asleep ever since. His fever broke after a dose of Tylenol and lying on a bed of ice for a good bit. Hopefully, he’ll sleep soundly…Rudy is scheduled for a full day tomorrow.
They have stopped the feeds to his stomach again as it seems he’s unable to tolerate them…They started the feeds very slow and yet he vomited a few times since Rolf’s last post. The plan for tomorrow is to do a test where they put contrast in his stomach to see if there is anything blocking the stomach’s ability to function properly. Most likely, they will also go ahead and put in a NJ tube that goes from his nose, through his stomach directly to the intestines…allowing his feeds to bypass the stomach for now and go straight to his intestines. Dr. Rick warned me of the possiblity of this last week and described it as temporary. Because we were told at the very beginning that HLHS kids often have longterm digestive issues, I’m praying fervently that that won’t be Rudy’s reality and that his intolerance to feeds is temporary. NO INTOLERANCE ALLOWED on MLK Day or any day, for that matter!!!
Although the focus has shifted to Rudy’s stomach, it is important to mention that everyone we talked to today is encouraged by Rudy’s lungs…the x-ray is looking good and Rudy doesn’t need the ipv treatments (to prevent the collapsing of the lungs) for now. This is good news and we are grateful. We praise God for the answers to prayer along the way in this journey of ours…thank you, thank you for prayerfully walking this long road with us.