Thanks to everyone for your concern these last few days. I think we know what it means now to “hit the wall”, but Trish and I have enjoyed some good rest. Oma is taking a shift at Rudy’s bedside so we’ll try to maintain a slower pace for the next couple of days. We certainly know the importance of “taking care of one’s self”, but there’s just no way to go through this without being stretched.
Rudy is stable. The general indicators are that the fluid drainage is decreasing. The strategy has included increasing feeds to his stomach (you might recall these were suspended several weeks back due to the NEC concerns with his intestines), but part of why this whole process may be dragging on so long is simply malnutrition. While the calories from TPN coming intravenously are good, food coming through the stomach makes for better caloric loads. After he did well on pedialyte yesterday, they started some high octane formula yesterday evening and are watching carefully to see how it processes. His tummy is puffy, but there are good bowel sounds and movements (he’ll really enjoy reading this when he’s in high school).