Today was another quiet day in the CTICU. Rudy was alert kicking his legs and moving his arms all around when he was awake and also had some long stretches of comfortable sleep throughout the day. His numbers remained stable for the most part. An echo-cardio gram today revealed some fluid around his heart. At this point, they will do another echo tomorrow to compare with today’s results. If the amount of fluid doesn’t change, they’ll keep a close watch…if there is more fluid tomorrow, then they will determine a plan of action to deal with it. I’m not quite sure what that means but I’m definitely praying the fluid will drain without needing an intervention of some kind.
The big milestone for today was the “sprints” Rudy took almost off the ventilator. Late yesterday he tolerated a 30 minute sprint where he was doing 80% of the work. A big jump compared to the 10 minute sprint he tolerated last week before all his episodes over the weekend. Twice today he made it a whole hour! It was uncomfortable for him but the nurse said he tolerated it well and the process of exercising his lungs will be uncomfortable for him. They’ll continue to do these hour-long sprints tomorrow as well as continue to turn down the breaths-per-minute on the ventilator. Right now the ventilator is set at 18 bpm…their goal is to get it down to 10 bpm in the next couple of days. It feels like good progress.
The older kids are enjoying their visit with Daddy (a bit of an understatement) as Rolf will stay in SB through tomorrow. They are all enjoying Oma’s goulash as I write! Yum, yum. I’ll head down to the cafeteria for my daily cup of soup here pretty soon and enjoy a little visit with UCLA nurse and family friend, Lisa, before she heads home after her 12 hour shift. I can’t believe we’re at the end of another day…and almost to the end of another week!! Thank you for your continued prayers for Rudy…our little fighter is working hard – sure to make all those cheering him on very proud!