The big kids all had plans so Trish and I were gonna have a little date with Rudy. Didn’t really have the location worked out but Rudy decided Cottage ER would be nice. Little seizure episode. Docs are checking a few things through with UCLA. Should be outta here soon!

Author: Rolf
Four Years Ago
I don’t think our family has enjoyed itself more celebrating Rudy’s birthday this year. The Heart Walk was such fun because it demonstrated the community that has surrounded us. To give an idea, we bought sixty Rudy-Blue balloons to hand out to our walkers…and we ran out! After all the activity on Saturday, Rudy’s actual birthday passed rather uneventfully. As the schedule turns out, Rudy doesn’t have school on Mondays which serves him well as he usually sleeps in after weekends full of sibling fun.
It had all the makings of an uneventful, mellow day (and pretty much was) save for the last-minute call for his monthly visit to the lab. Turns out the only phlebotomist who can get to his veins was in so they called to get it in. I guess the birthday treat is that it only took her one stick, but I’m not sure Rudy saw the upside.

Amidst all the activity that goes into celebrating Rudy’s birthday (it always falls on a really big week for us with the Heart Walk and the Rescue Mission’s “Back to the Bayou” Benefit), I try to take some time to go back four years into the blog posts to get a reminder of how far he’s come. Amazing how quickly all the emotions of the first week of his life can come back. (If you’re interested in walking down memory lane, click here) Forgive me in advance if we publish a few more looks back this week. The memories of it all (especially surgery day) are so visceral that even now they require some processing. Rudy’s come a long way and we’re so glad for the many people who have walked with us–whether you were there from the beginning or joined us later on.
The emotions of his diagnosis and birth were evoked even more yesterday as we learned the story of Greg and Kara Olsen of the Carolina Panthers who are right where we were four years ago. Praying for them as they walk the HLHS journey. You can watch their story here: video-heart-of-the-matter
Are You Ready For Some Football?
Holter Monitor Day
All done
Got the call after 6pm and had the consult with the docs. Here’s Dr. Dan giving us the subclavian slideshow. More details will follow but in short: stable & steady progress. Probably no clear-cut plan for surgery at this point.
Just got to Rudy in Recovery. The woozy warrior greeted us with a smile. Thanks for praying for this amazing boy.

Status Update
We’re in hour 3. Got a call from Nurse Flo in the Cath Lab at 2hrs and she reported that everything was going well and the docs were coiling collaterals. No guess as to how long they’ll take as Rudy’s got hundreds of them. They’ll keep calling with updates every 2 hrs or when they’re done.
We’re out here on the patio on a beautiful summer afternoon doing our best to minimize anxiety and adrenaline. From the looks of the text Bob just sent me, Livy and Max seem to be going out of their way to do just the opposite at the Santa Monica Pier.

He’s In
A Kiss for Mama
Keeping entertained
Procedure was delayed until 1pm so we had a long wait in PreOp. Glad Max and Livy came to keep Rudy entertained before they went off for fun with Uncle Bob and Aunt Kathy.








