Rudy is done…he remained quite patient the whole 4 hours in recovery but finally had enough during a pre-discharge echo and the removal of 8 of those sticky sensor thingys they put on his chest. We’re in the car now and settling into a long car ride home through LA traffic. I guess Rolf and I are pretty spent too…looking forward to sleeping. We’ll post more about the cath results soon!! Thank you all for your prayers leading up to today!!!! Love and appreciate you…
Author: Rolf
3rd try posting recovery pic
Repost: Recovery
Questions, quandries and worries are in good supply but for now we’re just glad to be here while our champ returns to form. Crazy about this kid!
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Not the numbers we hoped for
We just met up with Rudy in the PACU after a long conference with Dr. Dan and Dr. Harake. Unfortunately both numbers we had hoped to see change did not. If anything they got worse. The heart looks good and strong but the chronic lung disease is our main issue.
The team will conference next week to see if there are any steps they want to take. We’ll give more detail later but what’s assuredly not going to change is that Rudy is not a good candidate for the Glenn due to his pulmonary issues.
Sorry it isn’t better news. We’re here with Rudy now. He was a bit fussy but now he’s slowly waking up. Thanks for praying and walking with us.
Finishing up
After a late start due to some venting issues with the trache, we just got the call to go meet the docs. On our way.
Repost: 8am. Into the cath lab
VIP Treatment
(If you haven’t noticed already, I’m dealing with my nervous energy today by playing with iPhone apps.)
VIP perk #1: they usually let only one parent escort to the lab, but we both got to go.
VIP perk #2: Yes, they totally let us keep the monkey suits!! We’ve found that if you wear them in the cafeteria you can sit anywhere you want. People totally move out of your way.
Signing off for awhile. We were told to expect a status call around 10am.
Inside the cath lab
8am–Into the Cath Lab
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