I rolled out of a meeting at the Rescue Mission at 5pm this afternoon to the news that my g-tube (feeding tube) placement surgery is happening tomorrow (Thursday) at 11am! Surprise! Although Rolf and I talked with the neurologist recently about it being time to schedule a GI consult to discuss the plan for a g-tube, I guess our call to 911 last Friday was reason enough for Dr. D to expedite the process…catching us off guard a bit. This is a routine, out-patient procedure usually done in the GI office. The only reason they scheduled mine at the hospital is because I have ALS…I should be home by mid-afternoon. I’m not nervous about the procedure (‘been through this before with Rudy) but I would appreciate your prayers for the recovery. It’s hard enough for me to find comfortable positions in bed or my chair on a normal day, I can’t imagine adding wound care and pain management to the equation.
I don’t want to overdramatize the situation but I sure hope this move improves my quality of life and doesn’t diminish it. I’m going into this not knowing how I feel about it and I’m weepy. I feel like we just unloaded all of Rudy’s enteral supplies and the thought of resuming regular supply shipments from crApria discourages me more than the fact that I need a feeding tube. I know too much and have too much history in this arena to see this as anything but a major setback…I hope I’m proven wrong but tonight I’m uncharacteristically pessimistic and wonder if all the effort will even be worth it…but then again I want to see my baby girl graduate from high school so…! Prayer PLEASE!!
I’ll be off the grid for a few days and I’m already behind in responding to texts and emails this week so if you don’t hear from me (especially regarding requests to visit), please be persistent and try again. 🙂 Thank you dear ones.