Rudy had an EEG appointment yesterday. It has been several years since his last EEG but because Rudy hasn’t had a seizure in almost two years, Dr. Corazza recommended we retest to determine whether or not we can begin to wean Rudy off his daily doses of phenobarbital. Rudy was a happy and cooperative ROCK STAR during the hour long test and the tech said she was able to get some “beautiful data”! Dr. Corazza called later in the evening with the results…unfortunately the results are “not normal and continue to show a seizure tendency” so he strongly recommends that we leave Rudy on the pheno for now. I’m a little disappointed as it would have been super fun to see some healing in this area for Rudy but I’m not surprised given the nature of Rudy’s brain injury. So, we’ll continue to do what we’ve been doing and pray Rudy’s current dose of phenobarbital will continue to keep the seizures at bay. He’s actually at the maximum dosage for pheno…if seizures were to surface again, we’d have to make a medication change. Anti-seizure medications can have some pretty disturbing side effects and Rudy has done so well on pheno that we hope it can be his drug of choice as long as he needs it.
Rudy's Beat 
Love cap. AND smile. To bad no changes. Pray to stay stable
Looks like he is ready to swim a marathon.Big hug for Rudy! 🙂
As usual…..Rudy continues to prove God’s hand on his life. His attitude (Rock Star), Smile (contagious) and happy look in his eyes, shows the world HE is the wonder child.
Though this seems to be a disappointment, it may just be God’s way of preventing a harsher medication, so that is what we will believe. God has a plan so much better than we can imagine.
Fortitude is the word that comes to mind…. And you guys seems to have a good dose of it! Though not a setback, it’s quite the bummer. Hugs.
Praying with you for stability for that sweet little boy. Love to you all!
…Precious little angel! You all are in my thoughts and prayers!