School has been in session for a couple of weeks and all are settled back into the structured school/work/athletic & therapy schedules that keep this family on the go. I hear good reports each day from Rudy’s new teacher and aide and we are looking forward to hearing more about his class at “Back To School” night this week. After taking the month of August off at the Medical Therapy Unit, Rudy is back on the schedule with two PT and two OT sessions per week…this is in addition to the Adaptive PE, OT and speech therapy he gets at school so he definitely has a full slate of services that keep him working hard Monday through Friday.
We haven’t had any more discussions with the team at UCLA since our consult with Dr. Harake a couple of weeks ago. Rolf hopes to make contact with Dr. Dan sometime this week to follow up on the post-cath conference. I don’t expect there will be any major revelations as a result but the ongoing discussions and our inquiries keep Rudy on everybody’s radar and fan our hope that maybe, just maybe, something more favorable than what we have now will come out of it. We’ll keep you posted…
One facet of our family’s life may be stuck in perpetual limbo, but the many others are charging forward as life tends to do so we’ve embraced all the transitions of the past couple of weeks and the fun milestones reached. Life goes on and, despite what is (and isn’t) going on in Rudy’s body, he is most definitely front and center in it all…a gift not lost on us.
It’s hard to believe but Rudy’s birthday is just 2 1/2 weeks away! He gets to celebrate with 300+ friends as it falls this year on the same day as the SBRM’s big annual Bayou Event!! There is much to look forward to and lots of hard work ahead these next couple of weeks as we prepare. Woo Hoo!