The start of the new year has certainly directed Rolf’s and my thoughts to Rudy’s upcoming surgery but, apparently, it’s weighing on the kids’ minds too as Max and Olivia composed their own version of the following Christmas classic over the weekend…
“The Twelve Days In The Hospital”
On the twelve day in the hospital the doctors gave to me…
12 naps a day
11 x-rays of me
10 doctors operating
9 nurses dancing
8 hospital gowns
7 hopes for the future (how profound and absolutely sweet it this one!)
6 bottles of milk
FIVE STITCHES IN THE STOMACH
4 stuffed animals
2 dirty diapers
and an open heart surgery!
As scheduled, Rudy’s dance card has been full this week with visits -so far- to Dr. Harake (SB Cardiologist) and Dr. Pornchai T. (UCLA Pulmonologist). Both appointments went pretty well…no changes on the heart front and we have the heart cath scheduled for Thursday January 28th. Rudy is second on the schedule that day so ours will, most likely, be an overnight stay like last time. There is also the remote possibility that they will go ahead and admit Rudy into the hospital for the Glenn surgery at that time depending on what they find during the cath so we’ll plan accordingly. Either way we hope to have a plan for the Glenn as a result of this heart cath.
Rudy and I had a nice drive down the coast to L.A. on Tuesday. Dr. Pornchai did another thorough examination of Rudy and was a bit concerned this time with the way he was breathing. His breathing was a bit labored but he was also a little worked up after the long car ride, a late feed, being examined (normal baby stuff). I didn’t notice much difference from the way he normally is which then left me feeling like maybe I’m not reading Rudy right…what am I missing?…should I be concerned?…etc, etc. I’m tellin’ you, the mind games you start playing with the smallest of triggers can drive you crazy. Dr. Pornchai added a nebulizer med to Rudy’s regimin so we’ll start that, keep an eye on him and trust that we’ll know when something is wrong…ugh!
Of course, we had to pop up to the CTICU quickly while we were in the neighborhood to say “hi” to our staff friends and the sweetest part of my day was running into Dr. Andy M. who we haven’t seen since we left the hospital back in May. As one of the attendings in the PICU/CTICU, Dr. (Papa) Andy oversaw Rudy’s care on numerous occasions and he was so pleased to see how Rudy has grown. In his sweet, quiet way he just starred at Rudy and marveled so sincerely at how beautiful he is. Ahhhh, music to a mother’s ears. It is always so reassuring to check in with the folks on 5 east as they know so intimately how far Rudy has come. As the atmosphere in the unit on Tuesday was, once again, serious and intense, I hope our quick visits are mutually encouraging!
Did I mention Rudy and I had a nice drive down the coast? We are definitely blessed with a pretty commute down to L.A….especially in the winter time. I LOVE Santa Barbara in the winter… the sky is so clear and blue, the air is fresh and you can actually see the channel islands! Rolf captured these pics of Wilson on Sunday…a calm Pacific Ocean-
Water calm enough for Rudy!!!…I look forward to the day when Rudy can join them on one of their kayak excursions!