Lots to smile about; and nobody smiles like Rudy!
I think Rudy likes being home almost as much as we like having him here. We enjoyed seeing him make it through his first week ever without a doctor’s appointment. Given some of the med changes we’ve made over the past few weeks, we were curious as to what the report would be at his check-in with the cardiologist today.
We’ve gotten pretty good at reading chest Xrays, but echocardiograms are still very mysterious. The process involves sitting quietly in the darkened room waiting as multi-colored blips flash across the screen accompanied by the sound of rhythmic pulses. Lots of different measurements are taken and the print button is regularly hit when there seems to be a splotch worth capturing for posterity. Only when it’s all over does the verdict come–and this time it was a good one. Dr. Harake feels that there is nothing about Rudy’s heart function such that we need to schedule the Glenn. Rudy can keep on enjoying life at home and continue eating and getting bigger (today he weighed in at 15 lbs 5 oz!). His next appointment with the cardiologist is in early August so if his O2 sats remain in the 70s (today he came in at 77!) and there are no changes in his heart function between now and then, we have a real good chance of holding off on the Glenn until the fall.
As far as the lab work, we were very curious as to his Potassium level as this needs to be closely watched and balanced for proper heart function. Among the recent med changes, we discontinued Potassium supplements, so we were interested to see what his level was. Turns out you not only want to see a 4.0 on your kid’s school report card; it’s also the number you want to see when your checking the potassium level in his blood. And that’s right where it was–Rudy is doing great inside and out!