Sorry for the delay in getting an update out…’hope it wasn’t cause for worry to our faithful “Beat” readers! 🙂 I ended up holding Rudy last night after a late dinner until 1:30am so my usual evening post got sidelined. I’ll be sure to post a longer update later this evening but, for now, I’m encouraged to report that Rudy continues to move forward!
He did great with his 18 hour trach collar sprint yesterday so the order for today is 20 hours…Nurse Practitioner Anita said yesterday that once he is weaned off the ventilator they’ll want to watch him for a few days (possibly a week) before sending him home – we’re getting very close to that 24 hour goal so the next several days will be key in terms of determining whether or not he’s ready to be off the vent completely…you may recall that he made it 5 days off the vent before but he definitely looks like a different baby this time around…not labored in his breathing at all. We’re encouraged.
His feeds are going well too! Rudy is now up to 26ccs/hr and our goal is to get him to 30ccs by tomorrow afternoon. Once he hits 30ccs/hr, then we will introduce my breastmilk again. If he tolerates the full-strength breastmilk and there is no drainage output, then the drainage tube will be removed sometime this week. Please pray for this specifically…that Rudy’s body will respond well to breastmilk and soak it up like a sponge!!! This, too, will be a key turning point for Rudy. We’re scheduled to take a trip to Radiology (hopefully sometime today) for a swallow test. We need the test done before Rudy and I can begin non-nutritive suckling therapy…it’s something OT helps us with initially and then I can do it with the help of our nurses but it’s basically a process where I pump myself empty and introduce him to the breast. He’s not ready to take in milk orally yet but if we can teach him how to latch on now then he’ll be ready to go when the time comes…again, though, this all depends on wheather or not his body will absorb breastmilk so there is alot emotionally riding on the next couple of days for me.
So, hang tight…I’ll let you what comes of this swallow test later today! Big hugs from Rudy’s room…