Okay, there are those days here at UCLA that just don’t stop and today was one of them. It started out like every other day. I woke up, folded my bed linens and put them away, pumped, wandered out to the hallway shower and got showered/dressed and ate breakfast. I made it back to Rudy’s room in time to listen to the morning round report and then settled down to hang out with Rudy and do some suctioning. As it turned out, there wasn’t much “hang out” time with Rudy. The ventilator got rolled back in…the team reported during rounds that the xray of Rudy’s right lung was starting to look hazy again and head toward collapsing. As a result, they put Rudy back on the ventilator to keep things open and prevent the lungs from collapsing before his surgery on Friday. He didn’t like it at first (he feels the pressure in his lungs) but he was calm by the time I left him for dinner. Thankfully, it doesn’t feel like a setback but the big bummer is that because of an air leak around Rudy’s trach, the vent doesn’t always detect his breaths and as a result, the obnoxious alarm goes off almost continuously. I’ve threatened to shoot the darn thing with a shot gun in the past and Nurse Filma was just about ready to join me in my crusade after just a few minutes! Ha Ha
The team also mentioned during rounds that Rudy would be moved to the PICU tomorrow…something Dr. Rick talked to me about last week. Because the issues keeping Rudy in the hospital are no longer “cardiac”, he no longer needs to be in the Cardio-Thoracic ICU and a move to the general Pediatric ICU would be the next step…one step closer to home! Well, I enjoyed a good lunch with some great friends and when we returned, the room was half packed up and Rudy was ready for transport! As often happens in the ICU, things move unexpectedly – figuratively and literally…a bed opened up in the PICU and, bam!, off we went. I was a little embarrassed packing up all the stuff we’ve accumulatedly in 20 weeks…it took me 5 or 6 trips to get everything moved but the good news is we only had to move six doors down to a room in the same unit aaaaaaaaand, hold on to your socks, it’s a room with a private bathroom!!! Yep, a sink, a toilet AND a bath tub and shower!!! Happy, happy day. Like in most of the major events that have happened in his lifetime so far, Rudy slept through it all but I spent the afternoon rearranging everything and we’re nice and settled this evening. We’re going to miss our CT nurses desperately but we look forward to meeting a whole new pool of PICU nurses and we’re thankful that we can wave to our CT friends with only an administrative desk dividing us.
My mind is spinning tonight…alot to process and learn (the PICU has different rules and procedures) and there are a TON of details swirling around in my head that I’ve got to try to get on paper. So, I’ll sign off for tonight but will give a more medical update on Rudy tomorrow.