Actually forget about TV, I’ve seen a lot more doctors in person. The steps taken by the team this week made for a markedly different weekend with Rudy. The tracheostomy has helped Rudy with breathing on his own. As I mentioned in Saturday’s post, the team was going to give Rudy a couple of stints off the vent for two hours to see how he did. He did so well on the first two and actually got pretty agitated when we put him back on the vent (Oscar says that patients sometimes don’t like the feeling of pressure from the machine if they’ve gotten comfortable without it). So, we added a third on Saturday evening and since he wasn’t exhibiting any discomfort when I had to retire for the evening, they just decided to let him stay off. The team attempted to put him back on the vent in the early morning hours and he again expressed his displeasure, so they just decided to leave him off. And he’s been breathing on his own ever since. Go Rudy!
Even though we aren’t at the point of crafting a timeline for going home, during Sunday morning rounds, Dr. Rick said he wants us to start our education in what Rudy will need when he’s at home. Again, no specific dates are in sight, but it would be unfortunate to have any delays because of our training. So, it started yesterday with Nurses Jennifer and Gloria training me in how to suction out the trach. It’s not that hard and I must be doing it right because Rudy hates it just as much as when the professionals do it. It might make one a bit queasy, but largely because it’s unfamiliar. If Trish wants to do all the diapers, I’ll do all the suctioning.
We enjoyed the Monday holiday together with our other kids–simply being able to stay in bed while rain drummed on the roof was a great start. Trish is headed back to UCLA as I write this and the kids and I will enjoy some yummy chili tonight’s food fairy brought to our porch (thanks!) before getting ready for the week. We’ll be interested to hear the plan for Rudy’s stomache when the full team rounds in the morning.