Seeing Rudy intubated again reminds me of the question one of Livy’s fellow Brownies asked me at our last Girl Scout troop meeting. I wear a button with Rudy’s picture each day and at our last troop meeting, one of the girls stared at my button throughout the entire meeting. As we were saying goodbye, she finally came up to me with a concerned look on her face and asked, “Why do you tape your baby’s mouth shut?”. I took a second look at my button and SHE’S RIGHT – it does look like his mouth is taped shut!!! Oh my goodness, I’m so glad she asked for an explanation before going home to tell her family that troop leader Trish abuses her baby!
I arrived back at UCLA late yesterday afternoon and quickly scooped Rudy up for a good hold before he had to have his next respiratory treatment. Eventhough he was intubated again, I was relieved to see him relaxed and breathing comfortably in my arms. He had a day of rest yesterday but started sprints again today (see video below). There’s really no telling how long he’ll be on the ventilator this time but he cruised through his first two-hour sprint and today’s chest xray looks good so we’re headed in the right direction. There is question about the fever he has had for the past couple of days…tests have been conducted and there isn’t any sign of new infection so we’re not sure what’s causing the fever…a bit problematic for Rudy as the fevers seem to get him agitated which then effects his breathing. The Infectious Disease people are being called back in to consult so we’ll see.
Rudy is scheduled to take a little trip to Interventional Radiology tomorrow for the insertion of an NJ tube through his nose to his intestines. The hope is to start feeding him again through this tube but no specific timeline has been established. All in all, I feel Rudy is in a stable place…having to put him back on the vent was a discouragement, naturally, but all part of the “big picture” process and we simply need to regroup and readjust expectations once again.
This is a big week…Rolf and I are heading up to the Bay Area tomorrow for dear Rixie’s memorial service. Neither of us will be with Rudy for 4 days…the longest we’ve gone ever. Although Rudy and the other kids in Santa Barbara will be in great hands, it is unsettling to leave everyone behind. Please pray that Rudy will thrive and that Wilson, Max & Olivia will have a blast in our absence. Rolf is officiating the service and I’ll be singing so please pray for focus and composure as we turn our attention toward a very special life to celebrated.