Let me start out by apologizing to our dedicated Rudy’s Beat readers. We miss one day posting and start getting concerned e-mails. Thanks everyone for following our journey so closely. We had a full weekend and, as you read below, time in Rudy’s room isn’t as idle as it once was, so it was harder to get a post in.
As much as we want to be with Rudy every minute of the day, we’ve recognized that Olivia, Max and Wilson have needs as well. Part of this means giving them time with both of their parents together, so Trish got home Friday night in time for dinner with the men at the mission. We lazed around the house a bit on Saturday morning until we went to watch Max’s first basketball game of the season. Once that was done, I headed down to UCLA with Max as my sidekick as he said he was tired of weekends without Daddy. This ended up getting us there just before dinner, which was later than usual as several of the nurses and doctors reminded me on our arrival–I wonder what these dear people would do without us to entertain them. Of late, it seems that the unit has been very busy with lots of sick kids demanding long hours and attention from the staff. So we sit calmly in our room and are grateful that there hasn’t been much buzz around us lately. Always grateful for check-ins with staff when they stop by, but glad this isn’t driven by urgent needs for Rudy.
Rudy has been holding steady and the team is happy with his progress. As Trish reported, Rudy was getting tired with the sprints and vent drops, so Dr. Robert decided to let him rest on a plateau of sorts–16bpm and he held this well. It might feel like a bit of a letdown to stop the forward progress, but viewed in light of where Rudy was two weeks ago, it is a very different picture. He held at this level well for the last two days and even let the team turn down the pressure support a bit (technical details I won’t get into, but also steps toward breathing on his own). The chest Xrays are clear and the methadone has been turned further and further down to where he is very alert and interactive. The downside of this is that he now gets fussy (as babies do) and needs to be entertained. The only problem is we’re limited in many of the usual resources (carrying him, putting him in the swing, on his tummy, etc). So he lies on his back, waves his arms and kicks his feet, which can result in him getting tangled in some of his lines.
I got to hold him for long stretches last night and today and he really liked it. I was encouraged that twice today he got very agitated with his heart rate getting up near 200bpm, but we were able to calm him down without having to give him a rescue dose of sedatives or turn up the ventilator rate. Max and I showed up this morning ready to watch the game with chips, salsa and the works. Max got quite a few comments for showing up in his Giants helmet. As for the game, I won’t say much about that, but it sure was fun to be there with two of my boys. Max held Rudy for about 30 min and that was pretty cool too.
We left Rudy in the care of Nurse Amy and headed home, where we are now. Everyone’s showered and ready for bed and I’m looking forward to the game we’re about to play, but more getting to my own bed thereafter.