Today was a full day…after a challenging day yesterday, Rudy continued to struggle today with an inconsistent heart rate and labored breathing. At one point he broke into a cold sweat and his coloring turned for the worse…it was unsettling to watch him. On the other hand, today’s chest xray showed some fluid build-up in his chest but not enough to need another chest drain so for now he remains tube-less!!! The night team will watch him closely and if his chest starts to look bigger or his respiratory condition worsens, they’ll reconsider. For several weeks now we’ve been battling a triple threat…Rudy’s low thyroid function, the fluid in his chest AND malnutrition. Based on the most recent test results, the thyroid treatment he has been on has increased his thyroid function, his malnutrition numbers have improved and, as I’ve already explained, the fluid is still an issue but getting better so, in general, I think we are moving forward. Why he has struggled so the past couple of days, I’m not sure, but I’m not going to let it distract me from the slow progress he is making and I’m praying that it is just a temporary hiccup.
We did get to add a long-awaited element to Rudy’s treatment plan today…a little something I like to call “Mommy Therapy”! I’ve been unable to hold Rudy all this time mainly because of his ET (ventilator) tube and his chest tubes but because he didn’t have his chest tube anymore, I got the nerve up to ask Dr. Dan if I could hold Rudy joking that my holding him was probably the missing link in his ability to get well. Dr. Dan consulted good ol’ Dr. Rick who gave his okay without skipping a beat and this afternoon I held Rudy (with the help of nurses Alisa and Amy) for about 45 minutes! It was wonderful and you know what? During the entire time I held him, Rudy was calm and his heart rate didn’t dip once…maybe I AM the missing link!!!!! Ha Well, this special moment just happened to be taking place while the doctors did their afternoon rounds so Dr. Brian stepped in briefly to see what was going on…as he turned and left the room he said, “That made my day!”. You can bet it made mine too!!
I’m so sorry Daddy wasn’t here to share in the moment but maybe he’ll get his turn next as he is feeling a bit better and is planning to make the drive down tomorrow. Today was another day filled with lots of different emotions but it is ending with a baby boy resting comfortably in his crib and a Mama by his side with a full heart!