We just met up with Rudy in the PACU after a long conference with Dr. Dan and Dr. Harake. Unfortunately both numbers we had hoped to see change did not. If anything they got worse. The heart looks good and strong but the chronic lung disease is our main issue.

The team will conference next week to see if there are any steps they want to take. We’ll give more detail later but what’s assuredly not going to change is that Rudy is not a good candidate for the Glenn due to his pulmonary issues.

Sorry it isn’t better news. We’re here with Rudy now. He was a bit fussy but now he’s slowly waking up. Thanks for praying and walking with us.

After a late start due to some venting issues with the trache, we just got the call to go meet the docs. On our way.

Sorry the picture didn’t post the first time.

(If you haven’t noticed already, I’m dealing with my nervous energy today by playing with iPhone apps.)

VIP perk #1: they usually let only one parent escort to the lab, but we both got to go.

VIP perk #2: Yes, they totally let us keep the monkey suits!! We’ve found that if you wear them in the cafeteria you can sit anywhere you want. People totally move out of your way.

Signing off for awhile. We were told to expect a status call around 10am.

The big kids wanted to know what the cath lab looks like. Here you go. I’m always in awe of this place. It’s amazing what they can do in here.

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So here we are…Rudy is 2 years old.  When Rudy was born, the milestone of him turning two seemed so far down the road that we didn’t dare strain our eyes to envision it and now, looking back, it is hard to believe two years have passed!  How is it possible?  Reflecting on the past two years both overwhelms me and fills me with hope.  Today is a day for reflection and gratitude…

Rudy has come so far since the Norwood and we praise God for His grace and peace through every step of this journey…nothing in this journey has been particularly easy and, yet, blessings mark our memories!  We can’t say it enough…we are grateful! 

 

 

 

 

 

Thanks to you all for the sweet greetings on the blog and Facebook…stay tuned for Birthday Part II next weekend at the Heart  Walk!  Bless you dear friends…