Bye, Bye Summer 2013

It’s official…sadly, summer is over but the big sibs were all smiles when they headed off to school this morning and, even more importantly, were all smiles when they came home this afternoon.  Rudy and I visited his classroom today and we really enjoyed meeting his new teachers and school nurse.  He will start his first day bright and early tomorrow morning and because he’s back in Goleta, he won’t have a long bus ride anymore…he’ll be just a couple of minutes away from home!  Yay!  His annual IEP meeting won’t be until late September so any decision to pursue a blended schedule that would include time at La Patera (our neighborhood school) won’t be considered until then.  We’ll have to wait and see.  🙂

 

Our last two weeks of summer were filled with a number of doctor appts and lots of “to do’s” but we managed to squeeze in a little last minute fun too…

Nurse Dodi stayed home with Rudy one day so the big sibs and I could go to the beach...Wilson had a rare day free of marching band camp and joined us!  So fun!!
Nurse Dodi stayed home with Rudy one day so the big sibs and I could go to the beach…Wilson had a day free of marching band camp and joined us! So fun!!

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Rudy's last visit to CCS with the big sibs (sans Wilson)...along with school comes a new therapy schedule for Rudy...it'll be a bit of an adjustment for him.
Rudy’s last visit to CCS with the big sibs (sans Wilson)…along with school comes a new therapy schedule for Rudy…it’ll be a bit of an adjustment for him.
It's official...we now have TWO student i.d. carrying high schoolers!  How is it possible that Max is in high school?
It’s official…we now have TWO student i.d. carrying high schoolers! How is it possible that Max is in high school?
Olivia's "summer o' concerts" included an early bday present to see Taylor Swift!  It was AWESOME...of course, I had the most fun watching Olivia watch Tay Tay!  ;)
Olivia’s “summer o’ concerts” included an early bday present to see Taylor Swift! It was AWESOME…of course, I had the most fun watching Olivia watch Tay Tay! 😉

 

Our appts with the endocrinologist, neurologist and cardiologist were all pretty routine.  Rudy’s relatively new endocrinologist announced she is leaving the area so our appt with her was our last.  I’m sad because I really like her but a new endocrinologist has already been hired to take Dr. C-V’s place and will be settled before Rudy’s next scheduled appt so he won’t skip a beat in his thyroid care.

Bye, Bye to Dr. Candido-Vitto...we will miss her a great deal but wish her and her family well!
Bye, Bye to Dr. Candido-Vitto…we will miss her a great deal but wish her and her family well!

You may recall that after Rudy’s febrile seizure episode in late June, we weaned him off Trileptal and started him on Depakene.  Well, the Depakene gave him serious diarrhea.  I thought maybe that would subside once Rudy’s body adjusted to it but we battled it for several weeks with no improvement so Rudy’s neurologist has switched him to phenobarbital.  I have to admit that the switch to phenobarbital is concerning to me and Rolf as our only reference to the drug is “One Flew Over The Cuckoo’s Nest” but the pharmacist assured us it’s a pretty commonly prescribed barbiturate.  We’re keeping a close eye on him as it, too, can have undesirable side effects including irritability, lethargy and behavioral changes but it’s really the only other option to treat febrile seizures so I’m praying his body responds well to it.  He just started it this week.

Lastly, our visit with the cardiologist showed little to no change in Rudy’s heart function…no better, no worse.  There is no plan to schedule a heart cath this fall but Dr. Harake would like us to touch base with Dr. Alejos at UCLA to discuss the heart transplant a bit more.  Our consult with the heart clinic in May was supposed to include him but he was out of town at the time.  Dr. Harake feels it would be helpful to talk with him directly as Dr. Alejos is the one with whom Dr. Harake has been communicating so we’ll seek to make that connection sometime soon.  I was able to make appointments with the UCLA dentistry department AND Rudy’s ENT on the same day (yay!) so our next trip to UCLA will be on September 23rd.

So, maybe we’ll have a quiet school year (knock on wood!)…regardless of what is to come, I’m so grateful everyone got off to a good start today…

Sending Wilson off extra early for zero period!
Sending Wilson off extra early for zero period!
11th grader
11th grader!
9th grader!
9th grader!
6th grader!
6th grader!
While dropping Livy off, we had to stop at the K yard to wish gal pal Stella a great first day!!!  How cute are they!
While dropping Livy off, we had to stop at the K yard to wish gal pal Stella a great first day!!! How cute are they!
Rudy and I went back to have lunch with Olivia and he ended up making the rounds on the play yard with a posse of his buddies...precious!
Rudy and I went back to have lunch with Olivia and he ended up making the rounds on the play yard with a posse of his buddies…precious!

Happy School Year Everybody!!!

 

 

 

 

 

 

 

 

 

 

7 thoughts on “Bye, Bye Summer 2013

  1. My 11th grader also has zero period but would not allow photos! Love seeing your family photos along with wonderful updates. What dentist are you seeing? Hope maybe I can see you on 9/23.

    1. I’m not sure Joyce…I just made a general appt with Rebecca and she didn’t give me a specific dentist’s name. Come to think of it, I don’t even know where on campus they are located? 😉 It would be great to see you…I’ll be in touch as we get closer!

  2. Do my genius grandchildren really need to crowd their schools? They could just go to college and get it over with! Just kidding–have a great year Rudy and sibs! from Grandma Jo!

  3. Your family photos make me smile. But that smile doesn’t go away soon. I recall the looks on your faces, the love displayed in your eyes and most importantly, a strength and faith that few of us could muster in light of what you endure each and every day, just to live a normal as possible daily routine. You are a family that inspires all of us. This journey of yours, makes my journey so easy in comparison. You are dearly loved.

  4. great posts! I just want to pinch maxi’s cheeks! Rudy looked so happy at school. All your kids are beautiful! love you!

  5. Have a great school year cute Geyling kids! We’re coming up that way tomorrow for a quick trip to Hearst Castle and then back thru on Saturday. We’ll call and see if you’re around!

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