Rudy had his Make-a-Wish “send off” party yesterday evening. Wish granter Anne and her trainee Joseph came to the house with pizza, salad and cupcakes to present Rudy and our family with the official packet of information for our trip! It was a fun evening that helped build our anticipation and excitement! It’s sinking in that we’re actually going on this amazing adventure and we are all so grateful! Honestly, this is something we have joyfully (and tearfully-I can’t read about a Make-a-Wish trip without crying) watched other heart families do over the years since Rudy was born but I just never imagined we’d get to experience it…I’m nervous about all the traveling and getting from point A to point B but I’m also anticipating special experiences that will lighten the heart of our family. We have a VERY early 3am departure time out of Santa Barbara on Thursday morning which means in less than 48 hours, we’ll be en route to Florida!!!! Yikes/Yeay!!!!
It just so happens that one of my wishes is coming true too…We discovered in the planning of this trip that airlines do not allow oxygen tanks on board so we needed to arrange to travel with an oxygen concentrator (a machine that converts room air into oxygen). I’ve actually been working to acquire a portable oxygen concentrator for Rudy for over a year (since he started school) with no luck through our insurance and medical supply company. Because the purchase price of these units can easily run in the thousands of dollars, it has been beyond our reach. Inogen is a Nationwide Accredited Homecare provider that specializes in oxygen therapy and just happens to be headquartered here in Goleta. Make-a-Wish gave them a call and they agreed to lend us their “top of the line” unit for the trip!!! I still hope to purchase one at some point soon but the use of one for Rudy’s trip will completely transform the experience for all of us! We picked it up yesterday and Rudy adjusted to it perfectly (It’s a little different in that it doesn’t give Rudy a continuous flow of oxygen like a tank or our home concentrator but instead is triggered to give him oxygen when he takes a breath). Thank you Inogen!!!
Thank you all for your prayers and for sharing in our excitement! We are so humbled and grateful. Stay tuned for some fun pics..:)