Well, if you have to spend Christmas in a hospital, I think the best place to be is the MATTEL Children’s Hospital. The staff and volunteers here did a wonderful job putting on a big Christmas bash for the pediatric patients and their families. Eventhough Rudy was unable to attend, the rest of us enjoyed the fun. To be honest, it has been a strange day of fun and fatigue…our dear friends Patsy and Darlene brought the kids this morning just in time to see Santa who came especially to see Rudy before his big appearance at the party. We noticed something familiar about Santa’s gait and the timbre of his voice as he spent the better part of the day walking around the units and attending two Christmas parties for patients and transplant recipients. We also found it strange that a dedicated and friendly doctor like Dan Levi wasn’t anywhere to be seen all day. Hmmmmmmm?
It was great to have the kids here as we hadn’t all been to visit Rudy together since before Thanksgiving so we’re very grateful for Patsy and Darlene making it possible. So here we were in the midst of all the festive fun but also feeling worn and fatigued. Rolf’s continued back pain and the weekend of waiting for the next, highly anticipated test that will hopefully yield some helpful information were weighing heavy on both me and Rolf today. It’s kind of hard to function in such extremes of emotion at the same time and yet I’m glad for today…
The Child Life Play Area on our floor was turned into a winter wonderland complete with festive decorations, craft tables, a Hot Wheels race ramp, and a yummy buffet. Wilson was a good sport and attended the party for a little bit before retreating to Rudy’s room with a big plate of mashed potatoes for some peace and quiet; in typical Max fashion, he enthusiastically participated in all the activities and stayed long after the rest of us followed Wilson’s lead back to Rudy’s room. The highlight of the day for Olivia (and Rolf, too, I might add…see picture below) was meeting Barbie herself – in the flesh!!! Wow! Poor Santa got a pretty cold and timid reception from Olivia but as soon as Barbie walked into the room, she was in heaven!
The highlight of the day for me and Rolf was the visitors we had trickle in throughout the day. Santa and Barbie came to visit Rudy which I know he appreciated deep down inside. Dr. Brian and his sweet family stopped by on their way in between parties and I was excited to see Baby Logan (who was discharged 2 weeks ago) and his Mommy (Rayme) and big sister Emma who came back to join in the holiday fun. A real special surprise was a visit from Cesar and his mom Maria and sister Liz. They had been to the heart transplant recipients party and we were so blessed they took the time to visit us…they were eager to hear how Rudy is doing and, as always, encouraged us so. Cesar looks FANTASTIC and is just as charming as ever.
On the Rudy front, he has continued to handle his nutrition well, so thank you for the specific prayers to that end. They have upped his feed rate one cc each day so that he is now up to 5cc per hour. He’s never gotten anywhere close to this before and tonight they are going to start to scale back the intravenous feeds so they can continue to increase the feeds to his tummy. He’s had a peaceful day otherwise, though he may have something to say about having to endure his first Christmas worth of “Rudolf” jokes.