Five weeks ago today our little Rudy was born. That means we’ve had five weeks of foot holding, hand grabbing and head rubbing on Rudy, five weeks of the yummy soup down in the cafeteria, five weeks of walking to and from the hotel every morning and late night, five weeks of listening to the beeps and alarms of monitors and medication dispensers hooked up to our son, five weeks of hearing a recap of the kids’ day by phone right before bed every night, five weeks of searching Rudy’s big blue eyes, five weeks of (almost) daily blog posts,etc, etc, the list goes on. Not knowing, really, what to expect when we started this journey, a five week timeline is about what we originally planned around. Well, five weeks have come and gone and now it’s time to regroup, adjust expectations, and focus on a “plan B” for the next unknown block of time.
I am where I was 5 weeks ago…unsure of what the next several weeks will bring and VERY unsure of how to plan for the unknown. In Rudy’s world, you take life one hour at a time and yet I have a family at home that has needs that go beyond the next hour and I’m finding it hard to function in both worlds. All this to say, it’s time to look ahead to some degree and it’s a little overwhelming.
Rudy had an uneventful 5-week birthday. Today’s focus, once again, was fluid output AND it has remained about the same-no change on average since yesterday. In regards to the procedure scheduled for tomorrow, there were no clear indicators whether or not to do it which led Brian (Dr. Reemtsen) to hold off and postpone until Monday giving Rudy a few more days to prove himself unworthy of another trip to the OR!!! Because we would prefer Rudy not undergo another surgical procedure if at all possible, we’re at peace waiting a few more days. Please continue to pray that the fluid draining from around his lungs WILL stop (making the surgery CLEARLY unnecessary). Thank you, thank you!